Trigeminal Neuralgia
Posted , 5 users are following.
Am newly diagnosed with tn, but have been experiencing other symptoms I havent seen mentioned anywhere such as ringing in the ears.Does anyone else have this as Im starting to question my doctors diagnosis. Any help would be appreciated as am starting to question my doctors diagnosis and am getting scared.
1 like, 8 replies
louisa55738 amjad68472
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susan33651 amjad68472
Posted
I have had Tinnitus for decades, it can be associated with many things. Many people get it following ear infections, head injuries, taking certain medications, it can also be due to a specific problem with the structures of the inner ear or with the auditory nerve! It is often associated with autoimmune diseases. Sometimes it can occur without any real known cause. It can be linked with some types of tumours - not necessarily cancerous. I have had ear infections and head injuries, I take Ibuprofen (one of the medications linked with Tinnitus), I also have autoimmune disease. I also have TN.........so take your pick as to what causes the Tinnitus!!
I would ask your GP or Neurologist for some advice regarding how best to identify a possible cause for the Tinnitus. Perhaps ask for an ENT referral and/or an MRI to rule out anything else which might explain it. In the meantime you could try using white noise therapy to block it when trying to sleep, this has proven to be very effective for many Tinnitus sufferers.
Best wishes.
amjad68472 susan33651
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susan33651 amjad68472
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You're welcome. By the way, I take the Ibuprofen for inflammatory arthritis, not for TN, frankly for TN it is useless. Tinnitus is listed as a side effect of Ibuprofen.
To treat TN you need some sort of anti-convulsant and a drug designed for neuropathic pain. For the TN I take Carbamazepine 100mg 4 times a day on the dot! I set my phone alarm to remind me (a very useful tip from a forum member) plus I take Amitriptyline 50mg at night and 10mg twice in the day if the TN kicks off.
Best wishes
louisa55738 susan33651
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susan33651 louisa55738
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As to the TN, it doesn't keep me awake, but it does wake me up, especially when it flares up in my eye, evil pain and it incapacitates me for the rest of the day. On the plus side it does only last for a day, whereas before medication it would last for about 6 - 7 days. I do still get stabs of pain and electric shock-like pain elsewhere which in comparison to the pain in my eye is minor and I can manage it.
Good luck.
susaninseattle amjad68472
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sarah_41542 amjad68472
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