Posted , 5 users are following.
Please can anyone help. Im scared because I was diagnosed with tn but have started getting other symptoms that I dont find mentioned anywhere. I have ringing in my ears, and when I get the pain down my face Ialso have severe chest pains. Anyone have anything similar?
0 likes, 11 replies
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grant91899 amjad68472
Posted
I was diagnosed with TN a year ago ...have had numerous brain scans blood tests... medicated to the eyeballs to only be told now by nueroroligists that i have no signs of it in my scans so basically we have no idea why i have numbness and electric shock pains spasmodically dowm the right side of my cheek lip and chin ... so your not alone as to what is going on ... try a different doctor / specialist ... ringing ears is normally tinnitus... I know this doesnt answer your direct question but like yourself im just throwing my hands in the air going WTF
amjad68472 grant91899
Posted
It's driving me mad mate. I'm on Tegretol, and only today looked at some of the side effects which is dizziness, double vision etc which I've got, so stopped taking them regardless of doc. For once this Titanus has shut up today and had no pain. Am seeing a neurologist tommorrow and getting a scan sometime which should put my mind at rest that I even have this condition.
eddie13 amjad68472
Posted
Amjad,
Tegretol has been my life saver for 9 years. Yes it makes me tired, sleep, see double mostly after exercise. I've adjusted. Small price for something that works so well for me. Can't imagine without.
eddie13
claireabelle68 amjad68472
Posted
For years I have a condition called chostochondritis which is chest wall pain , how long have you had TN for, could it be anxiety , hope your ok too
amjad68472 claireabelle68
Posted
I've been diagnosed a few months, but have felt it come on gradually for the last year, but I've been looking after someone, so ignored it to the best of my ability. Had the odd twinge in my face but put it down to stress. It's only when I started getting chest pain, that I thought I'd best get it sorted. I'm still not 100 percent sure it's this as meds are making very little difference so doc has sent me for an mri on my head next month. How did this all come about with u?
amjad68472
Posted
claireabelle68 amjad68472
Posted
Hi , I found out last month that I have a hiatus hernia as I suffer with acid reflux too , mine chest pain I have had on an off 12 years , I am a very anxious person worry too much as I take beta blockers too been on them 9 years , have had lots of tests on heart and they don't find anything I now just think these are the cards I am dealt with so just try and do the best I can so being diagnosed with TN has put the icing on the cake , it just seems to be a tablet for everything , hope your chest pain is just anxiety of do you suffer any acid reflux ?
amjad68472 claireabelle68
Posted
Not that I'm aware of. Chest pain only happens when tn strikes tbh. Think it's just where it makes me jump. As it leaves me with higher heart rate for a while after. Got an mri booked for next month so hopefully get some answers. The ringing is worrying me though as I haven't heard any1 else mention this.
claireabelle68 amjad68472
Posted
Ok 'everyone can have slightly different symptoms it's a crazy illness good luck with Mri let us know what it is hope the ringing calms down for you good luck
Claire
susan33651 amjad68472
Posted
I have seen Tinnitus mentioned in the less common associated symptoms of TN, however, I too have TN and have Tinnitus. But, my experience with Tinnitus predates that of the TN. Tinnitus can be associated with many, many conditions and also with Head injuries. I have had head injuries. Some patients with TN have developed the TN following damage to the nerves of the face and head. Tinnitus can occur following ear infections, had them too! Also as you age the little hair cells in the inner ear die off and this can affect not only your hearing but can lead to Tinnitus, so, without being rude.......it may just be your age!!!(sorry).
It may well be that your Tinnitus is coincidental or it could be related. Without going over your medical history in detail it would be difficult to pinpoint the cause.
Read as much as you can about TN and Tinnitus and then discuss it with your GP or specialist following your scan.
Best wishes.
amjad68472 susan33651
Posted
Thank you it's only occasionally, but driving me mad!