Trigeminal Neuralgia

Posted , 6 users are following.

Whatever you do... No crying during pain!

Well, I am going to a Neuro surgeon

My pain is somewhat regular. Had Botox shots worked well for 4.5 years. Now I am having severe pain when it comes. It is a killer

My nerve pain are is due to a major hit in the face. Like a boxer hit. Pain area

Facial rt and ear like a knife then thru eye like a knife and the top of the forehead.

Does anyone have a hit that caused there pain? I take oxcarben ( misspelled) it helps but not right now

This has put me in terrible depression.

Again anyone have a hit that caused their pain?

Thanks ??

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4 Replies

  • Posted

    Crying during pain makes pain worse! So after 9 months crying I have finally stopped it as I understood it just makes this horrible pain even more horrible.

    Do I understand correctly that your pain started after someone hit you in the face? In that case your trigeminal nerve probably got injured. Do you have constant pain or more electric shock kind of pain? How old are you?

    I am only 26 years old and have constant pain. I had MVD operation. Before operation I had electric shocks pain also, but not anymore. Surgeon said that my head looked like I have been in a car accident or I have hit my head really bad. I haven't had either so I have no idea why my head was like that. I still have a constant strong pain and I take opioids (OxyContin) plus a lot of other drugs.

    I am not sure what is oxcarben, is it also an opioid? I am also depressed. For 9 months I even wanted to kill myself. But now I take antidepressants which also help with pain. I take 25 mg amitriptylin and 50 mg nortriptylin. Both are used for TN pain, plus they help with depression which is a bonus. I think you should ask these from your doctor. I also see a psychologist, who tries to help me to accept this condition.

    I have been thinking about Botox. Could you please write me where is your pain and how long Botox helped before you needed to repeat it. And also how they do these injections? I am planning to try it, but would like to get more information about it from someone who has tried it.

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    • Posted

      Hi Dona

      The word you are looking for is "OXCARBAZEPINE"

      Oxcarbazepine is an anticonvulsant drug primarily used in the treatment of epilepsy. There is some evidence for oxcarbazepine as a mood-stabilizing agent and thus, it can be used as add-on therapy for ...Wikipedia

      and so on and so forth ... very effective treatment for the facial pain (for me it was a life saver)

      Chase it up and read ALL about it and if you think it will help then take it up with your GP or Specialist (whomever you can get to first)

      Self Diagnosis is a VERY innacurate and Self Medication is far worse!

      [soap box OFF]

      Have a good Day


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  • Posted

    im interested in the botox thing, was meant to have had it last month as doc suggested it for the TN headaches, its not the bloody headaches that bother me so i cancelled the appointment, i was just worried about it being injected into the nerve and hurting it more?
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  • Posted

    Hello, our daughter was diagnosed with TN at the beginning of summer this year and she is 20 years old, she is Carmazepine topped up with naproxen and Tramadol.

    the neurologist appointment is not until the end of September so interested as to what they will say and advise for her as she is also in her final year at Uni studying to be. A nurse so this could not have come at a worse time, not that there is ever a good time for this awful condition to raise its ugly head.

    she has had good days but she has also had some very bad days but she does agree with you crying makes it worse and she can get very down, we are very concerned about the amount of medication she is currently taking and the effects that has on her.

    The Botox sounds interesting but she hates needles so not sure she would go for it, however she has found that Reiki has helped.

    All the best to you Paul

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