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trigeminal neuralgia

Posted , 8 users are following.

madeleine31271
madeleine31271

hello

I have been suffering with several different symptoms thats making me feel like im loosing my mind, the whole right side of my face feels like its full of fur, it burns, my eye gets red and feels like its on fire. i can wash and shave my face and none of this matters, my doc has tried prednisone with no success and now im on topiramate 25mg, i have only been on this for a week so have not seen any improvement but with all the researche ive been doing i have not seen anything thats given me any hope. does anyone have any info they can share with me please.? I know practically nothing about this disease and the waiting list to see a neurologist is long. not sure how much more I can take. Thanks to anyone who can help.

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  • Jeej
    Jeej madeleine31271

    Posted

    Oops - To continue previous reply...I had gamma knife 2xs - first one very successful and pain free for 3-4 years. Repeated procedure and was totally unsuccessful. Finally had mvd and ended up in worse pain. I was told by mvd surgeon that better to have had mvd first - then if unsuccessful do gamma as the nerve was too damaged and it affected outcome of mvd. I would think same goes for radio frequency as both procedures damage nerve in hopes it will break the pain cycle. Ask dr opinion - good luck
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