Posted , 8 users are following.
Anyone with trigeminal neuralgia find it painful too eat? I can't eat without being in severe pain, even when it's soft foods. If im going to be in this amount of pain everytime I eat I'd rather not eat.
0 likes, 8 replies
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heather30609 aimeeleigh
Posted
Hi Aimeeleigh, I remember feeling just like that when it first started for me! I used to eat tiny amounts at a time, feeding myself with my fingers so that I didn't have the metal of fork or spoon in danger of touching my lip or teeth. It was horrible. However, after some trial and error with medication and my GP, we got it under control and now, although I very occasionally get a sensation - I have no pain at all (fingers crossed it remains that way). I know that from many posts on this forum that I am one of the lucky ones but please do hang on in there and keep persevering.
jaynep aimeeleigh
Posted
Hi Aimeeleigh, I'm the same but I liquidise foods and use a smoothie cup and straw to eat. I can just about use the straw with touching any trigger points. Today my diet has been banana, double cream and milk blitzed in the blender. Yesterday I had a custard made with cream, eggs and nutmeg then blended with cold milk. Baby food it may be but it's keeping me fed with chewing.
Hope you get some relief soon.
Jinny.
jaynep
Posted
My reply should have read "keeping me fed without chewing".
heather30609 jaynep
Posted
interesting Jaynep - I found I couldn't suck so that wouldn't have worked for me! We're all different I guess.
caroline25339 aimeeleigh
Posted
I went through 10 days without eating...just protein shakes and smoothies. I used a straw and sipped on one side of my mouth. I also couldn't brush my teeth. Ultimately, I ended up in the E.R. and received I.v. Pain killers. Take it a day at a time.
Andraste caroline25339
Posted
oh yea,i know what that's like!! i went 6 days w/o eating anything due to another condition i have and lemme tell you that 7th day i had noodles boiled in ckn stock and i remember thinking at the time it was the best meal i'd ever eaten, i think i may have even whimpered it tasted so good.....
Stupid1 aimeeleigh
Posted
B4 m MVD surgery, but afterwards I can eat with no pain.
My double vision is improving but the hotizontal/vertical and 3D is not all well.
My eye doctor said it will take months b4 I get right again.
God bless
us and keep us and give us peace
lhicks10 aimeeleigh
Posted
I experience the same thing. I've lost weight because of not eating. I be so hungry too. It sucks.