1. Community
  2. Brain and nerves
  3. Trigeminal Neuralgia

trigeminal neuralgia

Posted , 5 users are following.

paul20109
paul20109

i've had TN for around eight months now and after taking carbamazepine for around two months with devistating side effects, I was taken off it ASAP and given Gabapentin instead. At first everything was fine but the pain quickly returned. I'm now taking 3300Mg per day plus Aniltriptiline every night to help with sleeping which has worked - I sleep fine. The problem i'm no faced with is i can only increase  my medication by 300Mgs, which is one week then i'm faced with the pain clinic. Has anyone been down this route?  And if so what happens at the clinic?

                                           Thanks

1 like, 3 replies

3 Replies

  • vicky59618
    vicky59618 paul20109

    Posted

    I think what your gonna find is that no drug ever fully takes pains away best to hope for is that they reduce to a level you can cope with and live your life I've been battling this constantly gor 17 mnths my only hope now is my neurosurgeon review comes quickly and he's understanding enough to do surgery. This condition is so debilitating and unless you've taken the drugs available for it you won't fully appreciate what we as sufferers battle with daily to answer your question I've never been to a pain clinic maybe they could be helpful it's never been offered to me good luck hope you find some balance.

  • patricia64722
    patricia64722 paul20109

    Posted

    Hi Paul

    I had your problem for 16 years. I then went to pain clinic in early 2013. Come April 23rd Tha pail clinic advised a balloon compresion. I was only in for 6 hours and came home. After 4 woks I had a mild attack which lasted 3 was It has now gone. I have been free from pain for 4 yrs. No more drugs and back to a normal life I can brush my teeth again no problem at all I can go under the shower with no problems and even go out in the wind no problem. I hope you get a good response from pain clinic

    Best of luck

     

  • angiegirl
    angiegirl paul20109

    Posted

    I've had TN/SUNA for 13 years . I do know what it feels like so I do feel for you. I am afraid to say that everybodyreacts in different ways and different drugs are used by different Neurologysts so it's all try and try again.  More people are trying operations now and even under Dr recommendation lots of different drugs but they do take a while to kick in which is not what you want to hear when you are in pain.     Keep on at your Dr to refer you to different people until you find one that you are reasonable happy with. Are you in UK. I go to London Neurology and Head clinic.     Take are and inspectors you get remission and pain free whilst you  got some help.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.