Trigeminal Neuralgia

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I have been diagnosed with trigeminal Neuralgia- however I have swelling along that nerve path, the side of my face. Has anyone else also had swelling?@

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  • Posted

    HI - yes I have swelling.  The swelling only occurs when my pain level is high.  My face feels like I got a good hit to that side of my face.  Also, it is very noticeable.
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  • Posted

    My daughter has TGN .When it very first started,she looked like she has a trout pout ,because both lips and the surrounding tissue were swollen badly.We thought she was having an allergic reaction to something.We had been on the beach having a picnic lunch and by teatime,she was screaming in pain and swollen.Both cheeks were bigger too.

    X Beth

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  • Posted


    I don't know that i can say if i saw any obvious swelling when i had TN , however my friends used to tell me that it appeared as if the TN side was swollen.

    The reason i don't think it was swelling is because in my experience , whenever i had the attacks i think i subconsciously focused on relaxing that side ( basically trying not to use any muscles on that side of the face) and that made it look swollen.  I don't know if that makes sense, but that's what i think.  Could be wrong.

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