Trigeminal Neuralgia and stephen johnson syndrome

Hi I was initially put on carbamezapine also didn't agree with me and was then put on oxcarbamezapine which is so much better together with lamotrigine. Had the glycerol injection 3 years ago would not recommend it as left me quite a few after affects especially my right ear which is still not right. Next step is MVD which I will have later this year after I have retired, as want to be drug free. Hope this helps fellow sufferers -a very horrible affliction.

Hi,

I have nursed several patients with Stevens-Johnson Syndrome and it is considered to be life threatening in many cases. It's extremely rare and can vary in severity. Many patients are nursed in ITU/ICU in the early stages. You need to be aware that once you've had such a reaction to medication that it can recur with the same medication - hence the need to avoid it at all costs - and also that there are other drugs which can trigger it. Ask a pharmacist for a list of drugs which you should avoid. You could also google it or check on this website ( Patient.info).

Good luck.

Hi Wendy,

I feel sorry for you joining the pain club wish you well, i am withTN since 2009 medication tegretol which is same as the one you on, september last year 6 years later l developed a skin rush mainly on my face and my arms since I've stopped using it, and now i am on PREGABALIN medication no rush since then, regarding the return of pain with a vengeance after a peaceful time that last a month or two usually i don't take any medication during that time and then from no where strikes again and yes with a vengeance ,from my experience stopping the medication it's a no no you reduce but do not stop, wish you a long period of time free of pain.

Regads

Lyes

I never got sis thank goodness, have you tried Gabapentine or lamotridgine.

ask you Dr about them.