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I have had 18 wonderful months in remission from TN during which time I have been off the meds.
2 weeks ago I had my first fresh attack but it was at the right side of my face. All previous attacks have been left sided. (I have suffered intermittently since 2011 and was diagnosed in 2014).
Over the last 2 weeks I have been experiencing more attacks (up to 8 per day). However most are more painful than ever before, particularly as they are lasting 20 minutes and afterwards leaving a dull ache and making me feeling exhausted.
I have not restarted the meds. Previously I was on Carbamezepine and Pregabalin. My consultant suggested for future flare ups I try oxycarbamazepine due to side affects I suffered from.
Does anyone share my history of symptoms changing after remission?
Also does anyone know if I restart meds now to try and control is there a chance I could stop the attacks sooner and be back in remission?
Finally are there any other suggestions to prevent attacks or cope with pain before going back onto meds? I find eating and sensitivity to hot and cold worst triggers at the moment but attacks are happening during the night too.
Thanks for any help.
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