Posted , 10 users are following.
I am in so much pain and don't know what to do. Second night in a row of not getting a bit of sleep because my pain is so bad, although tonight is much worse. Quick back story - I've had numb twinges/small shock like feelings in my face on my left side for 5 months along with painful points down my left neck. These symptoms would come and go but weren't intense enough to be debilitating. On top of that, I had a very sentitive tooth (receding gum) that was bothering me. I went to the dentist and found out I needed a root canal in the tooth in front of the receding gum tooth. Aparently the root infection was pretty bad - he spent "extra" time bleeching the heck out of it. Since the root canal my pain symptoms have seemed to come on more frequently. also, about four months ago I was also diagnosed with reoccuring mono by my GP from my bloodwork. Tooth pain has persisted, I was convinced there was a lingering infection but x rays by my dentist and a second opinion from an endodontist show no infection, but the tooth and the tooth behind it still hurt! This is when my dentist first told me about Trigminal Neuralgia. Last week I went back into my GP and told him about all theee symptoms, including increasing facial, neck and ear pain. He thought I might have Trigeminal neuralgia caused by the herpes virus living in my nerves and attacking them (I get cold sores from time to time but only one here and there so I wasn't sure about this, but just happy to have some kind of an answer). So he prescribed me an antiviral drug to start taking. Then, two nights ago the pain got significantly worse. Everything was flaring up all at once. It all seems to be spurred on by the tooth pain. All day yesterday was bad. Flair ups all day. Then toward the night it got to the point of unbearable (I have twin one year olds and a six and eight year old and my husband works long hours, so yesterday was awful just trying to survive and take care of my babies through this pain). Around 9:00 my ear pain/tooth pain/face pain/neck pain has gotten so bad I wanted to seriously take a needle or knife to my face (obviously wouldn't, but I thought it might help!!) I decided there must be something more going on (why the terrible flair up??) so I rushed to the instacare, wondering if I have an ear infection or something exacerbating the problem. The doctor said there was a little fluid in my ear and told me to take a decongestant. Ugh! But I was hopeful the decongestant would help. The pain had subsided for awhile now so I was also hopeful the awful flair up has gone down. I got home, was feeling pretty good, then brushed my teeth before bed. I'm pretty sure the brushing is what set me off. Now it's 2:00 and since about 10:00 (four hours) I have been having Trigeminal neuralgia attacks every 5-10 minutes! Some have been so bad I've been in tears rocking back and forth, and through all I've been through with my twin pregnancy my OB said he thought I had a very high pain tolerance. I have never felt pain like this. It is radiating through my entire left side of my face/upper teeth/ear/neck. I am miserable. Is there any kind of home remedy I can do to help? Tylonnel isn't touching it. I realized I have some Oxycodon left over from my c section I might try in about an hour once it's been four hours for the tylonnel. I'm going to call my GP first thing in the morning, but I am so miserable. No sleep for two nights in a row, plus I really haven't slept well for a month or so because of all this pain on and off. I've been searching around online for ideas and found this message board and was so happy to find somewhere i could talk to other sufferers! What can I do? What medication should I start with? Also, I've seen online that Botox can help myofascial pain. Has anyone done Botox for Trigeminal with success? I'm desperate!! I'm so sad because my older kids have a school talent show tomorrow night they are so excited about but I have no idea how I'll go with this pain. I'm so sorry I'm rambling. Just so distraught and frustrated. Please send any ideas for pain relief or medication suggestions I can bring up to my GP tomorrow. Thank you.
1 like, 9 replies