trigeminal neuralgia, seriously cant cope anymore, tips please
Posted , 86 users are following.
So I'm 24 and since Friday have been in agony, sunday the doctor said it was trigeminal neuralgia, after reading info on it, as I had never heard of it, its left me pretty depressed, I can't face doing any house hold chores, I've literally just lay on sofa, with my scarf wrapped round my head, feel like little red ridding hood! Not good when I have a 4 And 2 year old to look after, is there any tips on getting through this? I'll be honest early hours Sunday when it felt like my face was being stabbed with electric rods, I considerd taking all the tramadol I had, I was prepared to take that risk just to feel no pain, anyway I didn't the thought of the kids stopped me, I'm taking that anti convulseant tablets and so far provides some relive, although I feel rotten for taking them, is there any tips for getting through this? Since Friday its as though its ruled my life, would rather go through labour than this, never ever known a pain like this.
7 likes, 208 replies
laura19209
Posted
joanie1958
Posted
without my cheek feeling like it is on fire and it makes me either cry out or scream and the pain from the
right hand side of my skull,ear,cheek and neck constantly throbbing has been going on since 23rd Dec
when it felt like I had lock jaw, my doctor has subscribed Gabapentin 10mg and is slowly increasing it
each week now, but I am getting no pain relief at all, I also take Morphine, Zomorph, Baclofen,Arthrotec
due to spinal problems and was also on Amitriptyline but was taken off that. I am very confused as my
Doctor has told me nothing about this problem apart from what I have been given and although I have
trawled the internet can find nothing about what help there is, it seems like there is very little known as to how this is treated. I am already under the pain clinic for my spinal problem and constant pain with that
as it affects the nerve system already down my right side and now this. Is there anybody out there
that can give me any information regarding this problem I would be so grateful.
gill32586 joanie1958
Posted
Hi Joanie, Oh, my darling. How I feel for you. Like others on this forum , I too suffer from this and I know how difficult it is to cope. I feel for you so much. I don't think you have got through to your docter. Unless he is a specialist neurologist he just will not undestand what you're going through. You must insist on seeing an experienced specialist who can try various treaments or procedures. I have been helped by my man and have been seeing him for over 20 years. There is help which you can try. Please do so Love and prayers to you. Gill
colleen90451 joanie1958
Posted
chrisw10
Posted
patricia64722
Posted
pain will be worth it. After 16
years of trying different drugs (which don't work).
I was very interested in the result for trying marijuana ,but where do you get it from ?
osur_raghu patricia64722
Posted
Use alternative herbal tablets which cause minimum side effects
BigM osur_raghu
Posted
rosemary24038 osur_raghu
Posted
Hi ..I've just seen your post re varicose vein tablets for T.G.N ..were you taking any medication alongside these ?I have had an M.V.D & balloon compression this year and am on Gabapentin ,Phenytoin , Baclofen & Lamotrigine .Thankyou.
alicot
Posted
Do the research and find the surgery that will work for you and get off those stupid drugs unless, of course, you are satisfied with them. They say you want a surgeon who has done a lot of these surgeries. Who really know what they are doing! Good luck!
bill56363 alicot
Posted
Bill, in Atlanta
donna86115 bill56363
Posted
alicot donna86115
Posted
alicot bill56363
Posted
sandi47268 alicot
Posted
alicot sandi47268
Posted
luke46182 alicot
Posted
fred10352 alicot
Posted
colleen90451 sandi47268
Posted
Stupid1 sandi47268
Posted
God Bless Us And Keep Us And Give Us Peace
gill32586 Stupid1
Posted
Stlll praying for all the T.N. community.. God Bless.
Gill
patricia64722 Stupid1
Posted
I wonder in your case if it’s hereditary. I don’t know.
god bless
Patricia
Stupid1 gill32586
Posted
If this is found in 2 ppl in the same family, I just wonder if there I something in the food or water in that house or the community. I was in the military at Ft. McClandland All, a lot of chemicals have been found at that place.
Just my opinion. I can't niece all of this has bN hoing on for more than over 20 years and there is no cute found. I tell all the ppl I Come in.Contact with about this dredged up disease, no one has ever heard about it. I tell doctors about it and they have never heard of it. I am going 2 get a license plate made up, How I Survived TN and is hear to tell about it.
That statement is what brought me 2 this site in 2016.
God bless us and keep us and give us peace
Aleitrafromcali Stupid1
Posted
I suffer from TN & also my Aunt ( my Mom sister) Doctor said it can be in the genes.