trigeminal neuralgia, seriously cant cope anymore, tips please

Hi Laura. You may be able to stop or lesson the pain by standing straight up',arms down and serious face still. I usually get attacks when getting into bed, Keep face very still. Never miss a tablet .T N will surely make you pay

i've said this before to many people, its alright saying 'go get an op'  yeah,  IF YOU HAVE THE MONEY FOR IT.

Hi Laura I'm sorry you're suffering I know this pain well. I did have the surgery at Cedars Sinai in Los Angeles at the age of 46 and did well except for the surgery site for whatever reason I had tenderness and electric  like shooting pain and still do 10 years after the worst thing is surgery does not last forever like I thought TN returned 10 yrs nearly to the date so I am on narcotics and Sonisamide (a seizure medication) that stops the facial pain in its tracks the narcotics help with the pain at the surgery site. The surgery was like a miracle to me.  The rest is just something I have had to live with. 

Hi Laura .I may have some way that may help.At least they work for me.When cheek pain cuts in hold your breath as long as you can while keeping a serious face.Take a really big breath.For me this works in 12 secs approx. counting in your head. ALso remove all electrical clocks and phones and radios on bedside tables.Set them up away in a corner nowhere near your head.Hope this helps.

Oh I know how you feel but don't despare your Doctor Will help you through and pain clinic. The tablets make you feel bad at first and it's fine just persevere.

Hi Laura, sorry to hear your suffering I know how you feel. Four years ago I had this condition, My Dr did nothing So I went and had Acupunture from a Actupunturist who studdied Chinese medicin I had four sessions and my condition went away for 12 months then almost to the day it came back, I returned for more treatment and so far Iv'e not had any more problems. It's worth a try anything is better than the pain. Good luck.

Hi Laura, I'm newly diagnosed with this awful condition and was wondering what happened to you and to every one else. Did it get better??? Is there an end to this??? Recently every morning I wake praying its gone and it never is..... I have 2 young children and daily tasks are just agonizing..... I just want to curl up and forget my existence right now..... Please any one with any tips or advice would be greatly appreciated..... I'm currently on Garpentin and Naproxen and Cocodamol to help the pain....

Hi I had TN for about 13 years. I went to a pain management clinic in York England. I had a balloon compresion. I have been pain free for 2 years 3 months.

Omg, I'm so happy to see your post. I'm 24 also and was just diagnosed with TN. The emergency room Dr. acted like I was crazy for thinking I had TN at my age "You're way to young for TN, you just need a root canal." Well I had one plus and extraction including my wisdom tooth and none of it helped my pain. Finally a Maxillofacial surgeon diagnosed me and prescribed me a prescription that has given me my life back. This condition is so unbearable, I would cry every night or after a very long bout of shocks. People would call me a baby or wuss and say I just couldn't take pain, but no one who doesn't have this, has felt pain such as TN.

I also felt suicidal, but I have a one year old who is the love of my life and I couldn't bare to leave her. I too contemplated taking a whole bottle of pills but instead, I prayed and asked God to take the pain away or to atleast have the Dr's find the cause. I'm now managing my TN as best as I can, taking one day at a time and I think we could be a good support system for each other, being the same age.

Alea

I have had TN for14 years now and been on various tablets I do suggest you join the TN association which has been very helpful to me and it is only £15 a year to join. I find stress does make it flare up and the cold wind in winter. I am currently on gabapentin and trileptal, (oxcarbazepine) over the years I have reduced to a very small dose of gabapentin. It can flare up and then die down. My doctor referred me to the top neurologist in my area who was an expert in TN as generally in a typical doctors surgery they don't come across many cases. It is a condition that can be managed but the more information you have the more in control you will be.

Hey im Bonnie, im 25. I've had a problem for 10 years that doctors are just now saying is unclassic TN. My pain is literally debilitating and breathtaking and absolutely nothing helps. Everything i do causes short lasting spasms of sharp, stabbing and twisting, crippling pain that shoots out of my left ear. It used to be both ears until i was 3 months pregnant with my daughter, the pain completely went away, then came back about 3 months after she was born, worse than ever and only on the left side. The chronic pain lasts about 20 seconds straight then fades to a more dull but still debilitating pain that lasts 3-4 minutes. After the pain stops, it takes a couple minutes to be able to think clearly and see straight again only for all of it to happen all over again... this happens at least 10 times every hour of everyday. I am exhausted because i cant sleep and I'm always grumpy because i cant ever even sit long enough to relax. The past 3 months have been challenging, its gettimg worse. I can feel myself getting slower, my words are slurring my reaction time is a fraction of what it should be. i cant drive, i cant work, and i cant play with my 2 year old daughter. I dont know what to do with myself anymore, i dont like to go out in public because i look crazy when i have to stop right where i am and put my head down to hold my ear. Im truely ready to give up if i cant find relief. i hope that someone out there can relate and help because im out of options and im tired of suffering