TRIGEMINAL NEURELGA
Posted , 5 users are following.
Hi all i was recently diagnosed trigemina neurelga ita horrid face ear pain. was prescibed 450mg pregablin. the cold winds make it worse. how longs this neurelga last please??
0 likes, 14 replies
thomas92086 mark17776
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Make sure you are being diagnosed and treated appropriately. It can be caused by inflammation in the Fallopian canal, where the nerve exits the skull to get to the face. Sometimes a steriod, e.g. Prednisone, is injected to the site. It can be caused by a bad cold that gets to a sinus or some other cause of inflammation.
mark17776 thomas92086
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margaret06926 mark17776
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mark17776 margaret06926
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Glor888 mark17776
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Unfortunately this time around, for some unknown reason Tegretol didn't work, even with the top up of Amitriptyline. I then had side effects, so the Dr changed the Amitriptyline and gave me Gabapentine to try. But this time the side effects were worse, so I was told to stop the Tegretol as the Dr was convinced this was causing the side effects. I continued with Gabapentine on its own, and the worst thing happened, my legs buckled, I had bad double vision and unsteadiness. So I had to come off that too. I saw my own Dr this time and he tried me on Phenytoin, this was tried for a few weeks on gradual increase of dosage, this didn't even touch the pain. This time around I came out in a bad rash, again I had to come off the tablets. Third attempt now is the same as you've been prescribed, Pregabalin but 50mg twice a day. I've only taken them for a couple of days and I'm still not pain free yet. The Dr is monitoring my medication weekly. I won't know til the end of this week whether this medication will work. I think is is the third best choice after Tegretol and Phenytoin. So for the last 4 months I've not been pain free, yet.
Do you take your Pregabalin 450mg once a day?
Is it relieving your pain?
I hope you get pain relief from this.
A lot of people have different stories to tell regarding their length of time they've had this awful condition. Some get breaks and it returns others have it continuously for longer.
mark17776 Glor888
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Glor888 mark17776
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Sorry to hear Pregabalin not working for you. Mine isn't either, mind you I'm not surprised at such a low dosage. Ask your GP to put you on Tegretol. That is the first and top choice for TN as it is the best one. It may not work for everyone but worth a try for you. Good luck I hope you get some results soon and let us know how you get on.
Best Regards, Gloriana.
mark17776 Glor888
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Glor888 mark17776
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I was started off with 200mg 3 x daily. When that still didn't quite relieve the pain the dosage was increased to 250mg then gradually to 400mg 3 x a day before I had total pain relief. It depends on the level of pain you have. Your Dr may start you off with a low dosage and monitor your progress. But be warned Tegretol will leave you feeling nauseous at first but it subsides eventually. For me personally I think they were strong enough, and out of all the different medications I've had this time around, for me I still think Tegretol is the best.
But don't forget it doesn't suit everybody. You won't know until you try ok?
Let us know how you get on. Good luck.
mark17776 Glor888
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sarah03063 mark17776
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mark17776 sarah03063
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mark17776 sarah03063
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Glor888 mark17776
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hope you don't mind my advice but you would be better off starting a discussion of your own as this is Marks Discussion board for his own problem.
When you put up your problem on your own board, which will benefit you personally, other people will comment on it ok?
I will respond to your discussion when you put it up others will do the same ok?
Chat soon,
Gloriana.