Trigeminal neurosis? ??

Posted , 4 users are following.

I'm just going to jump right in! This is the 1st time I've done anything like this.

I started out having some tingling around my lips just on right side. Along with this I had a horrible headache, chills, joint pain.I finally saw my doctor a week later because it was getting worse and slowly moving up my face. He started me on prednisone and a RX for doxycycline because I had been bitten by ticks. (Nothing bad, no rash or grossness ).

I thought the steroids would kick in and I'd be ready to play in my garden. The week got worse! More severe headache and it feels like something is pressing on my head. Eyesight bad and I actually am seeing things that aren't there. I feel like my eye is drooping but its not. Now my cheek is numb but also had some burning...

I went back to the doctor yesterday and he scheduled an MRI first thing Monday morning.

I've had shingles on my LEFT torso. I heard it won't cross over,? Anyone have this problem?

1 like, 5 replies

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5 Replies

  • Posted

    Hello lizaakakisa

    Doesn't sound too much like TN. One thing, what was this about being bitten by ticks? Not sure where you live or what are the indigenous pathogens carried by ticks where you live?


    Big D

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    • Posted

      I live in KY and about 6 years ago, I was "attacked" by ticks all summer! NOT exaggerating, ok, kinda. But, I was on doxycycline for about 4 months.

      When I went in for this problem, it started with aches pains chills and headache. i mentioned tge ticks and He prescribed the doxycycline in case of infections.

      I actually feel like it is similar to shingles - the pain I mean. In the beginning I felt like there should have been a thousand little blisters . When it moved on up my face and eyesight is way off, I called doc back. The headache is so painful.

      I'm sorry, ivfeel like I'm rambling.

      Anyhoo, MRI on Monday so ..... wait and see.

      Thanks for response. I appreciate it.

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  • Posted

    You have Lyme disease (I also have it) the majority of GPS have little training on it do it may have been over looked.

    1- you do not need the typical bulls eye rash to of been infected

    2- even if you did not have Lyme it's likely you have a tic transfed virus from the bite (such as mycoplasma)

    3- when you have Lyme taking antiebotics such as doxy starts to kill the virus and as it dies it reacts by making you feel much worse, this is called a herx effect /reaction.

    4- you'll need a prolonged course of abx to get better , you'll need a Lyme specialist ideally.

    5- read up about Lyme as there is so much information on there, it may take a while to recover or it may be quickly depending on how long it was before you got your first round of abx and if you had co infections and viruses.

    If you need any help feel free to contact me!

    I've been having some TN like symptoms also and my doc things it's Lyme related being made worse by a deep filling that's touching a nerve,

    Hope this helps!

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    • Posted

      Dear whythisnow,

      Thank you so much for your reply. I hope YOU get some answers/relief soon.

      I go Monday for an MRI. It's been so frustrating because I felt like the prednisone was going to help but instead, the symptoms keep coming.

      I have a good relationship with my doctor, and I trust him.

      I'll post when I find out results.

      Again, THANK YOU!

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    • Posted

      Prednisone will not help if you have an infection. It will make an infection worse because it takes down your immune system. I can see that doctors might percribe prednisone and an antibiotic if you have an infection but personally I dont understand this rationale. Prednisone is great for inflammation but not if the inflammation if an infection.
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