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Trigger points of Fibro??

Posted , 3 users are following.

constance.de
constance.de

I actually suffer from PMR and have been on Prednisolone for nearly 4 years.  We all hate pred and I would love to come off it, however I still have a lot of pain and I wondered if I now have Fibro.  I have read there are 18 trigger points.  I have several painful points, but not 18.  Does this question the idea of Fibro?  Looking forward to any advice.

1 like, 6 replies

6 Replies

  • Bee70
    Bee70 constance.de

    Posted

    Hi Constance

    I'm not familiar with PMR.....

    Have you seen a rheumatologist ?

    It's a possibilty that you may have fibro but you do need to confirm this.

    • constance.de
      constance.de Bee70

      Posted

      Yes, I have been under a rheumatologist for 4 years, but he is not particularly helpful -  I get much more understanding and help from my doctor.  I will see him again next week, but I just wanted some info about Fibro before I talk to him.
  • Bee70
    Bee70 constance.de

    Posted

    My experience of my Fibro is that it started when I was 23 with pains in my right hands. I thought I may have knocked my hand on something so didn't really worry about it in the first instance.  When the pain didn't disappear I went to see my GP after about two weeks and he put it down to R.S.I. and put me on anti-inflammatory meds. Pains were getting worse and he just changed my meds. Two months went by then he suggested carpal tunnel as now I was getting shooting pains up and down my arm and had swelling on my hand. I had various different types of anti-inflammatory meds by now and six months down the road I started to feel low and the pains were increasing.  Over the years I have had treatments from acupuncture, reflexology, seen a chiropratctor, all sorts of pain management clinics, scans, electric currents passed through the body......after about 10 years of getting no where with the professionals and to be told I have chronic pain....I lost all faith in the health service.  I also when to see a herbalist and he gave me chinese herbs along with a diet sheet.  I can say that this reduce the pains.  I then had my first child and during my pregnancy I was pain free but after birth the pains came back with avengence.  Now I have pains in both hands, arms, neck and shoulders. So I was back to square one.  Now having other responsibilites with kids I didn't really have time to worry about my pains and carried on regardless.  I am now 45 with two boys and a husband and the pains are no better. I also have problems with sleep because the pains as well as night sweats keep me up.

    In the last six months I have had CBT (Cognitive Behaviour Therapy) and this has made me more mindful and I am able to cope with a day at a time and take control of my life.  Although the pains are still painful, I am more postitive with my day.  I am also trying ayruvedic remedies and it's too early to say if it's working but I wil report back if I feel any better.

    Fibro pains can not be seen and people who are close to you don't really understand your pains. For me joining this forum about a month ago I feel more at ease communicating with people on the same wave length.  It so re-assurring to know that you are not alone.

    Hope you get more feedback to assist you.

  • linda17563
    linda17563 constance.de

    Posted

    Hello Constance...I have posted on PMR (3years) about steroids ect....wonderful Eileen!  I have had Fibro though for over 12 years, the pain is different from PMR, and I knew straight away that things had changed when I got PMR...There is websites that show the "trigger" points..if you google it, but doctor`s don`t always go by this...they are mainly low hips, shoulders, ankles, all different places, no two people are the same, also extreme fatigue....general pain, lots of things.  When I first went on steroids (15mg) I felt like a car with a new engine! no pain from either, but lowering steroids, the fibro has kicked in big time....it`s a minefield.  I don`t think the doctor`s really know what to do about Fibro.....I was really glad I could at last be treated with something when I went on steroids....but they are now bringing their own problems for me...and the Rheumy had said I must come off!!...Good Luck...

     

    • constance.de
      constance.de linda17563

      Posted

      I've had PMR for 4 years and am still on steroids (7 mgs).  Rheumies ALWAYS want you off Pred, but go off it and you often fall into a deeper pit!  The pain I am in at the moment is not all that different, but it is always there, that's why I'm wondering if it has changed into something else.  

      I believe Fybro often starts because of stress.  I'm not really a stressful person (there are so many people with far more problems than I have ever had).  

  • leona18728
    leona18728 constance.de

    Posted

    Hi I'm not familiar with PMR either?

    But for me

    I'm 57 and looking back I suppose Iv had fibro from around 14 if not earlier I was a healthy kid but but remember having pains everywhere, adults just said they were growing pains and that I would grow out of them,

    When I was carrying my children had no pains but had very high blood pressure, I have two but miscarried two also, after giving birth the pains came back but not as often,

    Life goes on they grew up and I always worked full time, Rhings really took hold when I started to loose my hearing terrible migraines and vertigo like you couldn't imagine crawling on the floor for two or three days having injections to stop the vomiting,

    This then went and kidney infection after infection being hospitalised for antibiotics to work, one day I went back to my GP about yet another infection where she noticed my face was very red, she did tests for Lupus and they all came back positive, I was treated and seen in rhymatology for several years by now I'm in my early 40's

    The pains never left you just learn to live with them living your day accordingly,

    Then on one appointment my rhumatologist told me I have Fibro as well,

    Points were in the back of my head down my neck shoulders arms rib cage back hips knees feet I had them all,

    Iv had quiet times over the years and horrendus times, Everyone is different and can take pain differently but everyone's pain is important it's no more or less than the next person we all have to live our day the best we can,

    My Moto is keep positive ( not easy I know) laugh (I do at myself a lot) will fibro fog it's hard not to with the stupid things that come from my mouth sometimes 😃 learn to listen and respect your body, don't be afraid to let others help you but try to keep your independence,

    I know I've gone on a bit I can't use my hand any longer to type, but that's my experience on my fibro

    Good luck with your GP

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