Trying to decide on HOLEP, not 100% sure I need an operation
Posted , 15 users are following.
Hello everyone, I have been diagnosed with BPH about 3 months ago and still wearing a catherter since that time waiting for an HOLEP operation. I have tried CIC and failed, actually passed out in the nurse washroom fell on the concrete floor bangging my head and noze pretty bad.
I'm not even sure I need an operation, it all started 3 months ago when I felt ill, went to the ER and had my creatine level at 230, at first they didn't know why, then they did a bladder scan and had about 800ml of urine after void, I never had problem urinating, the flow was normal but I was going often and couldn't hold it in longer. After also an echo of the prostate, they told me it was very large and needed an operation. They prescribed me Flowmax (tamsulosin) but it did not do much.
I don't understand why they did not prescribe me the combo med, Flowmax is considered a a1 Alpha-blocker (helps relax the muscle around the urethra) and another popular drug a 5 alpha reductase inhibitor like Avadart (a dutasteride) that shrinks the prostate, there is also another drug called bethanechol chloride for detrusor muscle contraction for urinary retention, not sure if some of you men are aware of these drugs or tried it as a combo. It seems to me that urologist just wants to operate, they signed me up and make me wait but in the mean time we did not try these things.
In any case, this coming Monday, I'm going again for another prostate echo and tuesday I have another appointment with a second urologist for green light surgery.
Another thing I wanted to ask your men of BPH suffering, have you tried CTM ( chinese traditional medicine for BPH) according to them, they say that Urologist in our countries dont' understand the prostate and just want to destroy it, apparently they say that the prostate is calcinated and need to remove the heat and restore normal blood flow to shrink the prostate naturally, even ncbi gov sites did some research, herbs such as: Rou Gui (Cortex Cinnamomi) Huang Qi (Radix Astragali) and Chuan Shan Jia (Manis pentadactyla L.) (41.9%), Shu Di Huang (Radix Rehmanniae Perparata) (38.7%), Shan Zhu Yu (Fructus Corni) and Fu Ling (Poria) (32.3%), E Shu (Rhizoma Curcumae), Huang Bo (Cortex Phellodendri), Ze Xie (Rhizoma Alismatis) and Wang Bu Liu Xing (Semen Vaccariae) . Wondering if anyone ever tried these
I appreciate feedback from you all including my friends Ken and Jim
John
1 like, 63 replies
kenneth1955 John-T
Posted
John-T kenneth1955
Posted
Thank you also for talking about my case to your urologist, I will try to see my urologist to ask him about medication when I go for my echo on Monday, I'll have a better idea on the size of my prostate, I also have another appointment with another urologist on Tuesday this one is a green light expert so I'll see what he says, they both have info of what was done from the very first urologist who wanted to do a TURP on me, so really the one from HOLEP and Green Light have only data from the first TURP urologist so they haven't really did any more testing so I'm preparing some questions for both of them, if you can think of some question that I can ask them, I'd appreciate your feedback on that too. Myrbetriq sounds like a good medication according to Urology Times.
I'll keep you posted and sure hope you are doing ok with your heart issues.
Take care and enjoy your weekend
John
John-T kenneth1955
Posted
INGREDIENTS: Vaccaria Seqetalis, Paeonia Suffruticosa, Paeonia Veitchii lynch, Astragalus membranaceus, Patrinia Villoea juss, Peucedanum praeruptorum, Glycyrrhiza Glabra L., Saussurea lappa clarke, Akebia trifoliata
FUNCTIONS: Conditioning Prostate Gland functions, promoting glands activities, helping the recycle of blood and stop pains and inflammation.
Just starting on it today so I'll keep you posted
John
ramblin kenneth1955
Posted
kenneth1955 ramblin
Posted
kenneth1955 John-T
Posted
John-T kenneth1955
Posted
I'll keep you posted
Enjoy your family weekend
John
John-T
Posted
kenneth1955 John-T
Posted
John-T kenneth1955
Posted
John
mark23925 John-T
Posted
tom86211 John-T
Posted
Sorry to hear you are having these difficulties. You say you have been wearing a catheter for several months. There is a high probability of an infection with prolonged catheter use - I had to do this for 5 weeks, got used to it, but it can be tiresome.
About the CIC: it can really help you, but you have to gradually learn to do it. The first time I tried it was impossible. I then studied all about CIC and the various catheters used, and sent for samples of hydrophilic catheters - self lubricating. I tried CIC again with one of these, and was successful. It gets easier each time you do it.
There are many possible procedures that can help your BPH. The easiest, with fewest side effects, would be PAE, performed by an interventional radiologist, not a urologist. Second, would be Urolift - the prostate Is moved away from the bladder and urethra with implants - no cutting or destroying prostate tissue. Next would be Rezum - parts of the prostate are steamed and eventually die. Next would be laser ablation. Revolix (Thulium laser) is the best, followed by Greenlight. HOLEP (using the Holmium Laser) is extremely effective, but the prostate tissue is morcillated in the bladder, and that means it must be performed by experts, such as the Mayo Clinic. Then, there are other treatments - TURP being the most common. There are different types of TURP using either a cutting loop, or a plasma button that vaporizes and cauterizes the tissue - much better than the loop. Bipolar loop is better than monopolar loop. Anyway, you have a lot of research ahead of you.
You can take the pills, like Flomax or Avodart (Finesteride/Proscar researches better), but there are side effects. Other drugs for overactive bladder - also have side effects.
I don't know about the Chinese herbs - maybe they will work.
Before you make any decisions you need to know the size of your prostate and whether there is a median lobe protruding into the bladder. The HOLEP procedure is very effective dealing with enlarged median lobes. Urolift is working on a clinical trial involving the median lobe. Note, that HOLEP scoops out a lot of prostate tissue, so it is highly likely you will have retrograde ejaculation. This is not the case with Urolift.
Back to my original point - once you know what you're dealing with consider the procedure that has the fewest side effects and can be performed close to where you live and is covered by your insurance.
In the meantime, don't give up on the CIC - you can get used to it, but you will have to use a hydrophilic catheter. Most companies that sell/make them will send you free samples. Use the smallest one that will work - 14 fr (French) size might work. 12 fr is too small. 16 is "normal". The curved tip (coude tip) is painful for a first time user, but some like it. It didn't work for me and was what my urologist gave me for my first try.
Tom
John-T tom86211
Posted
I know wearing a catheter for so long brings more problems but for now I have no choice, I'm trying to mind myself to try CIC again, it seems that my brain won't accept it, not sure what it is I guess just looking at the lenght of these succers gives me the creep. I'll start by ordering some self-cath samples and see, hydrophillic coloplast speedy cath, are those the best one to start. I guess 14 fr is a good size to start with, I have a 16 fr cath now.
I know that HOLEP is a great choice for me, I have some worries about bleeding, retro, erections, etc.
In any case I have my echo on Monday to see the size of the prostate so I'll know more and will keep you posted.
Thanks again
John
kenneth1955 John-T
Posted
John-T kenneth1955
Posted