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Trying to get diagnosed

Posted , 3 users are following.

jazzyanne
jazzyanne

Did anyone's gp take bloods into account when trying to get diagnosed my sodium was 146 (range 135 - 145 ) not mega high bicarbonate 12 (range 22 - 29 ) when i look them up both point to "could be cushings , my potassium says storage changes not sure that means (they were private bloods .

9am cortisol high and 12am.

0 likes, 10 replies

10 Replies

  • bap84000
    bap84000 jazzyanne

    Posted

    My gp (General Practioner) took blood tests but not the right one. I did my own research undiagnosed for a couple of years and my symptoms became extremely acute. I asked for a morning serum cortisol, she had missed that one test.  My tests were off the charts too high, clearly pointing to the problem. The UFC (24 hour urine) confirmed. They usualy require 3 diagnosis from at least 2 different tests types. Sometime cortisol can be unusually high, if stress conditions, pregnancy, athletes, ... 

     

    • nikki197
      nikki197 bap84000

      Posted

      Did u get a cortisol saliva test at any point? 
    • jazzyanne
      jazzyanne nikki197

      Posted

      no my gp never did this i am going to ask him on monday for a referral to a endo 
  • nikki197
    nikki197 jazzyanne

    Posted

    Did either of you get a cortisol saliva test? 
    • bap84000
      bap84000 nikki197

      Posted

      I take saliva coritol tests every few months now. My results are very low now. I like the UFC because I find the exact number of a diurnal period is accurate. I was diagnosed with recurrent cushings. I had 2 surgeries and finally Gamma Knife radiation. My numbers are good if anything I may need steroids before too long. I take replacement Thyroxine, Testosterone, and Growth Hormone. 

       

    • nikki197
      nikki197 bap84000

      Posted

      Oh wow. I just did the cortisol saliva test and it came back very high. over 1,000, so my doc had me do the UFC, I just turned it in today so I'm hoping sometime next week I will get the results. Do you know if oral birth control effects the saliva test? I had started taking them because of irregular bleeding with the nexplanon implant in my arm. 
    • bap84000
      bap84000 nikki197

      Posted

      The results it is always important to note the ranges. On my tests the results should be < .112 mcg (or ug) and my last one was at .0062 ug. do you know the ranges for your saliva tests? it is sometimes different for different labs. my understanding is that "oral" birth control could affect the results, but your dr should be able to answer that one.  endocrinologist is important to help.  .112="" mcg="" (or="" ug)="" and="" my="" last="" one="" was="" at="" .0062="" ug.="" do="" you="" know="" the="" ranges="" for="" your="" saliva="" tests?="" it="" is="" sometimes="" different="" for="" different="" labs.="" my="" understanding="" is="" that="" "oral"="" birth="" control="" could="" affect="" the="" results,="" but="" your="" dr="" should="" be="" able="" to="" answer="" that="" one.=""  endocrinologist="" is="" important="" to="">
    • nikki197
      nikki197 bap84000

      Posted

      The range was supposed to be < or = .009

      yea my endo is the one that ordered the tests. i just totally forgot to mention it when they called me i was just so freaked out. i have been doing all this research about cushings because i'm so nervous. do the birth control pills also affect the urine test ? or=".009" yea="" my="" endo="" is="" the="" one="" that="" ordered="" the="" tests.="" i="" just="" totally="" forgot="" to="" mention="" it="" when="" they="" called="" me="" i="" was="" just="" so="" freaked="" out.="" i="" have="" been="" doing="" all="" this="" research="" about="" cushings="" because="" i'm="" so="" nervous.="" do="" the="" birth="" control="" pills="" also="" affect="" the="" urine="" test="">

      yea my endo is the one that ordered the tests. i just totally forgot to mention it when they called me i was just so freaked out. i have been doing all this research about cushings because i'm so nervous. do the birth control pills also affect the urine test ? >

    • jazzyanne
      jazzyanne nikki197

      Posted

      hi my cortisol saliva test was 13100 pg/ml the range was 1800-14500 pg/ml do you think that was high?
    • nikki197
      nikki197 jazzyanne

      Posted

      Well based on the range they gave u you fall into it. It's in different units than mine was
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