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So, I'll try cut a long story short. Kinda
I've Always had heavy periods from starting at age 13. As I approached 18, I was having two periods a month, painful, heavy, sometimes clots, pain during sex, immense back pains and high body temp. Dr's told me I'm young, messy hormones, will settle, here is the mini Pill.
Mini Pill made me bleed every day of being on it and made me depressed. I cannot have the combined pill due to migraines and DVT. Due to how heavy my period is, I can't have the copper coil, as I'm already borderline anemic when my periods are bad (when having 2 a month I was anemic) they also tried the pill that stops your period, mostly used for honeymoon and holiday sex, but it was tried to stop my double periods, and the back pain! Unexplainable!
I had various blood tests taken, when I had a blood test during the time of having two periods, they said I was showing as potentially infertile? But not to worry, as this could be the "false" period. (I worried) I then tried the injection which I also bled for three weeks and spotted.
Between all these Hormone treatments, it took about two years of constant back and forth with doctors. Usually I'm assumed to have an STI (brilliant) as their answer (I have never had one but they always test) then, when they're negative "my hormones will settle, I must be stressed" .
Eventually they said the Hormone Coil is my answer, I obviously am willing to try anything. So it was inserted, that night I had pains, like bad period pains, I assumed it was normal as it had just been put in that morning. The following afternoon (a day before I was due to fly to India for work) the pain was unbearable, and my legs had flared in rashes rejecting the coil. Dr's told me to go straight to AnE. One nurse told me it was infected (I assumed this), but she was in the AnE room, I was then passed on further (charming right). However, I was then kept over night as they said they couldn't see the coil and assumed it was implanted in my womb or had taken itself for a wander.
I then had the ultrasound camera the next day to check further. Some cysts were spotted. Confirmed I also had a tilted womb, and could struggle for a baby (not that I'm in any fit state to try). They told me the coil was fine, it was in place and thy could see it and it just had slight infection, but don't fear, that's normal due to being put in? (worrying).
Due to still being in pain, I asked them to take it out while at the hospital, but no nurses were available (thankfully) and they sent me on my way saying I'm fine. Day after, I rushed into an emergency appt with my Dr's due to the pain, they said it can't be removed as it was infected and could cause PID if they removed it. Lucky for me the hospital had no nurses the day before, as they didn't diagnose the infection or provide antibiotics. Their actual diagnosis was "constipation". Even though, excuse the French, I'd had a s**t an hour before their scan. Utterly fobbed off.
I had also just met somebody around this time, so as you can imagine, confidence in the boodwar or in the general vaj region, was not an option, especially due to the infection which took weeks to clear! I had to explain the situation, which isn't something you want to do with a fresh love interest. Sorry I'm abit broken down here.
So three weeks of anti biotics later, feeling drained as I bled every single day since it was put in. My Dr's finally agreed to take it out. Buuuuuuuuut they couldn't find it, s**t themselves and sent me to AnE where after all the same scans again, it was basically fish hooked and ripped out of me! Painful and gross! And also followed with another 2 weeks of anti biotics. I lost alot of weight and became very fatigue and caught a shed load of colds from my immune system being killed by 6 weeks of antibiotics! The second round were 2 different types of strong antibiotics, followed with a blood blocker tablet and a cheeky painkiller.
After that ordeal and being told it was my last option in Jan 2018 I came to the, I give up stance. I just wanted to recover and would take extra painkillers to endure a normal day of life where my period isn't causing me jip. Since, I have been suffering immense pain in my periods, pelvic pain before and during cycle, sometimes in the middle, which I'm assuming is ovulation pains? I'm talking pains that have your body burning up and wake you up in the night.
Apparently (according to my partner) I become restless in my sleep, moany and fidget alot to then wake up in agony. If I take a mefanamic acid as soon as I wake up in pain, after an hour, the pains are not as intense.
I have been back to the Dr's since, who prescribed mefanamic acids (highly recommended however I take every 4 hours not 6).I actually bought these myself from India a year before the Dr's decided to prescribe it me, naughty I know, but, I was in pain and a friend recommended them as they worked well for her. I'm also not sure if they cause more pain sometimes due to clotting the blood, which for me, is already the case?
The next month, I passed out from the pre period pains on my landing, and decided, the give up attitude is not an option as this was controlling my life. I bleed through clothes, and can bleed through a tampon and pad easy. As you can imagine, with the pain and anxiety of bleeding through my clothes when I'm on, work and social events aren't appealing, nor is sex. Which may I add, can hurt. I basically want to curl in a ball and be alone with a hot water bottle and some strong ass painkillers
So, I have been on a waiting list for a potential laproscamy (I can't spell it) for 4 months, but finally, an appointment in August. Now, I'm worried I'm going to be passed about, as every time I have gone back since with my issues, we start from the beginning and go round and round, make little progress, then back to beginning. I've now had back pain for 3 months (rest and painkillers were the answer) and I get pains in my lower abdomen frequently. But I "shouldn't worry" apparently.
I don't know if I maybe have PID onset, or my endo is growing and applying pressure around my womb and organs, is that a thing?
I've shared my story to see if anyone has advice or has had similar issues? Or if there is anything to say that makes a Dr listen! I feel like surely heavy periods, which are now almost regulated to every three weeks, obviously sometimes I get the cheeky week early one that likes to pop up, literal pain in my arse! Surely this irregularness and endo in general affects your mentality?
I was never really a low person, but I feel (minus the PMS) I find myself down and drained and just feeling... Meh. My anxiety seems to have got worse, probably due to other life stresses ontop of me wondering if I'm infertile or have a womb covered in endo.I've seen it takes years to diagnose, and I'm currently in the 6th year of going back and forth now.
I'm considering private if I get no further after my next appointment, is this advisable?
Thanks for reading, I know it's a long one
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