Trying to reduce prednisalone
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Can someone advise please .Dropped from 13mg pred Tuesday to 12 mg .woke early hours this morning with bad pad pain in neck which had now spread into right shoulder . Before diagnoses PMR after pain on other side 3months ago I have had pain on and of on right side for years .This went altogether after starting preds . But now back with avengance . Would dropping one mg of pred react so quickly .While coming down from 15mg over every 6 weeks or so have a little pain after a week or so and upped for a few days then dropped again but have never had it happen so quickly . Due blood test next week and doctor 2 days later but should I go back up to 13 mg or hang in there at 12 mg . Co Codamol doesn't seem to do much for me . Elaine ?
1 like, 19 replies
pat38625 carol16456
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tina-uk_cwall carol16456
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carol16456 tina-uk_cwall
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pauline36422 carol16456
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EileenH carol16456
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The other thing could be steroid withdrawal pain - that usually starts immediately you have reduced the dose and improves over the following week or so. Flare pain will get worse as time goes on. I was never able to reduce 1mg at a time going from every day one dose to every day new dose simply overnight, That is the reason I worked out the "dead slow and nearly stop" reduction which is described in posts 4 and 5 of this thread:
https://patient.info/forums/discuss/pmr-gca-and-other-website-addresses-35316
The first post has links to other useful sites where you will find more info. The reduction scheme is very slow and fools the body into not noticing the reduction! It has worked for a lot of people. We used to think that it was only at lower doses this was a problem, when the percentage drops were higher. Now we realise a lot of people end up yoyoing on their pred dose at higher doses because of this pain - whether it is a flare of steroid withdrawal doesn't appear to matter - this helps avoid the pain.
Cocodamol rarely does much for PMR pain and it is a shame to let the inflammation get to entrenched - but I imagine there is no chance of getting the blood test brought forward, especially since it is Friday.
carol16456 EileenH
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EileenH carol16456
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Where in Hertfordshire are you? There is a good Cambridge group and an excellent group in Chertsey - people travel from Wales and all over the place to that one! Since the meetings are only every couple of months I think it is worth being willing to travel a bit - in fact Watford to Chertsey is the same as Basingstoke to Chertsey on the motorway and one lady from Basingstoke attends every meeting.
carol16456 EileenH
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MrsO-UK_Surrey carol16456
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carol16456 MrsO-UK_Surrey
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EileenH carol16456
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No, you'll be fine, it is a before lunchtime meeting usually! The one I went to some of us went for lunch afterwards. I'm sure you will enjoy it - I did and do wish I could go more often.
MrsO-UK_Surrey carol16456
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MrsO-UK_Surrey EileenH
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Watching the tennis - C'mon Andy, I need to get the roast in the oven!
carol16456 MrsO-UK_Surrey
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mike39589 MrsO-UK_Surrey
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MrsO-UK_Surrey mike39589
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mike39589 MrsO-UK_Surrey
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MrsO-UK_Surrey mike39589
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EileenH MrsO-UK_Surrey
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