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Trying to work

Posted , 5 users are following.

denise_3560
denise_3560

I go to work feeling good in the morning, but by evening of the first day I'm absolutely wiped out!

0 likes, 7 replies

7 Replies

  • olivetree
    olivetree denise_3560

    Posted

    Hi Denise

    What happens after the 1st day?  Do you feel ok the next morning or is it a steady decline over the week? Do you work full time?

    My problem is I feel awful in the morning and struggle to get through the day and i really don't know how I do it.  I only manage to work 3 days a week then spend the next 4 in recovery for the next onslaught. Even then I sometimes have to take sick leave before the end of the week. But the strange thing is I become more mentally alert in the evening even though I am shattered all day and then can't sleep rolleyes

    • andrew22534
      andrew22534 olivetree

      Posted

      i used to come home and sleep / doze the evenings away... cut my hours to 3 days working alternate days. This worked till my heart started playing up a lot more....
  • dragontest
    dragontest denise_3560

    Posted

    Hi denise

    If returning from a relapse I have to have a phased return otherwise I am off sick more or less straight away.

    I found either I can work or have some kind of life and but to do both I find it is impossible. I tend to try and work and keep my mind occupied to stop me dwelling on the condition, however by the end of the working day (5pm).  I have to sleep until early evening (8/9pm), when I will awake and normally try and eat something then I have to rest for a while and return to bed, only to live the same cycle day in day out,

    I do not have the energy to socialize as "normal" people can. I have to live this way in order to pay my bills… it’s not fun and not living just existing I’m afraid, but at least I’m no longer house bound like I was for many years. I tend to get my weekly shopping on line and delivered to the door as I find it impossible to drag myself around any supermarket.

    With ME you have to adjust just about everything in life it sucks like hell but their appears to be no fix for it just yet only "work arounds", but thats life isn't it.

    Dragon

    • IngeniumSingula
      IngeniumSingula dragontest

      Posted

      Hi dragontest,

      I know what you are saying.  I work 4 days a week.  I dragged myself through this afternoon and fell asleep when I got home from work for 2 hours.  Then ate and watched a bit of tv but have been desperate to get to bed to sleep.  I don't socialise during the week and only occaisionally at the weekend, and then it is carefully planned with a rest.  I occaisionally feel i'm missing out but try to enjoy a bit of chat and humour whilst at work.  when i get home my brain is too exhausted even to hold a brief converstaion.  I had the worst relapse in 2 years after following a Step into Health programme which contained all the usual government advice so I wouldn't do graded exercise therapy. It's encouraging to know others are making similar choices!  I've noticed that Fatigue scales often assume that work/social life/house work/exercise all increase at the same rate rather than the individual choosing to work at the expense of social life, activity or housework .

  • denise_3560
    denise_3560

    Posted

    I'm rested from the weekend because I do absolutely nothing but sleep and lay down. After the first day, I become so achy, fatigued, and mentally exhausted. I also have Ibs, so it flares. I'm so exhausted by just the first day, I can't stand loud talking or noises or mentally having to do anything. I make it to my bed and go to sleep early, but it's not enough. I'm still exhausted the next morning, so I call in with fmla. So in the end, I work about 3 to 4 days on a good week. Also, I get very sad because I want to work, but physically just can't.
    • dragontest
      dragontest denise_3560

      Posted

      I know what you mean Denise.

      It’s a condition that rob's you of the fun things in life for sure...

      I found pacing has helped me over the years, as I have had ME for close on 20 years and tried just about everything going trying to cure my ME.

      You certainly need the sleep and rest as pushing yourself when you’re so exhausted, does more damage than good. The “GET” therapy some doctors try to push to patients with ME /CFS has shown that exercise when unwell causes a relapse in most people.

      Sadly, it’s a condition that the World Health Organization has only recently listed as a disease rather than a mental condition, the significance of that is the NHS uses the same classifications.

       

    • olivetree
      olivetree denise_3560

      Posted

      I'm the same - I like my job and wish I could do more but truthfully I know what I do is really too much as it is, and I would definately cut my hours or even stop working for a bit to give myself a chance if i could afford it. I hate having to call in sick it makes me feel like a fraud and I hate having to let people down. It's rotten having to live this way isn't it!

      At least we can all sympathise with each other even if the rest of the world finds it hard to understand this.

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