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TSH Figures

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Gizmo1963
Gizmo1963

Over the past 6 months I've been feeling extremely exhausted, suffering with loss of memory, lack of concentration, depression even though my antidepressants were increased, aches and pains, severe constipation where i have had to go to hospital as my bowels were not opening for up to 17 days, lack of appetite etc. I have been back and forth to my GP and my TSH which was usually around 1.1 was at 3.8. I have been told this is still in range. I have had a further test 4 weeks later and it is now at 2.6. GP will not increase meds so I've asked to be referred to an endo. My mother had her thyroid removed in her 30's and my daughter has just been diagnosed with an underactive thyroid at age 31. I Currently take 75mg. i also suffer high bp, high cholestrol, fibro, osteoarthritis and migraines. please help

0 likes, 8 replies

8 Replies

  • tricia75429
    tricia75429 Gizmo1963

    Posted

    HI,

    I'm so sorry that you are suffering so much. I too went through these problems which are being sorted by an endocronologist. So I'm very pleased that you are going to see one. I hope you he / she helps you.

  • april02564
    april02564 Gizmo1963

    Posted

    Yes you need to see a specialist-and if they are a good specialist they will by your symptoms resolving and not your TSH number solely. My primary doc also was the first doc to put me on the meds-she has no idea how to get me to the right dose/and thought I would be fine on just .50 of Levo LOL!!! because my numbers came into the "normal " range.....yet I had to go to the ER because I was so sick....I am not seeing a specialist-who will raise my meds until my symptoms subside.....however it took me 2 years to find this kind of doctor!! and I saw 3 before this doc! So hopefully you are seeing a good endo!!! who will go by your symptoms-not the huge range of "normal" on the number scale! for TSH

    • Gizmo1963
      Gizmo1963 april02564

      Posted

      Hi April, I don't even know if my dr will refer me to an endo or if i will need to see one privately. what I do know is I can't keep going on like this. maybe it is not my thyroid that is causing all these symptoms but unless I have the full blood works done and see and endo i will not find out.

  • tricia75429
    tricia75429 Gizmo1963

    Posted

    Hi Gizmo,

    Ive waited about 10 yrs to see an endo. One GP said "you dont want to see one of them, they are quacks!"

    but Ive had great care including a whole raft of blood tests and a check on my adrenal gland, which are ok. but my cortisol level is decreased so Im having my pituarity checked.

    Over the years I have been having all the symptoms you mentioned and still being told Im in range!!! Best wishes

    • Gizmo1963
      Gizmo1963 tricia75429

      Posted

      Tricia, 10 years wow! What made you wait so long? were you not aware you had an issue with your thyroid? I'm worried now my gp wont refer me or i'll have to wait months and will need to see someone privately. I may send of for a private bloodworks test.

    • tricia75429
      tricia75429 Gizmo1963

      Posted

      hi gizmo 1963

      I was diagnosed in 2000 and took Levothyroxine 50mcg. The years went by and I got to thinking that I knew very little about what type of hypothyroidism I had. As my gp was clueless I asked to be referred to an endocronolgist. My gps reply was " Oh they are all quacks!" (bogus) That was appx 10 years ago.

      In the last few years my bloods have been in range which didnt quite match up with the state of my body.

      The endo took a large amount of blood tests and found that my cortisol output is low. So Im currently under going tests.

      I hope you are referred and get the necessary blood screening

  • Levo
    Levo Gizmo1963

    Posted

    Hi Gizmo 1963, so sorry you are suffering so much. Everything you describe is a symptom of hypothyroidism and with a TSH of that number you are under medicated if you have all those symptoms. Unfortunately being "in range" means nothing to us sufferers of under active thyroid. The GP should never use the TSH figure as the means to tell you that everything is fine with your thyroid and amount of Levo you are taking. What you need to look at is T4 and T3 but unfortunately the NHS doesn't seem to consider T3 is important that is why so many people have it tested privately. Unfortunately so many endocrinologists are specialists in diabetes and not thyroid so unless you can find one who specialises in the thyroid then that also is a waste of time. No wonder we end up taking our health into our own hands. I wish you good luck and better health

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