TSH level came back at 1.9
Posted , 7 users are following.
Hi all, I'm new here. Saw my Rheumatologist yesterday, who gave me my TSH result that my gp did last week and it came in at 1.9. He said it was absolutely fine as it can be 5.5 and still within normal range. Was told that I am worrying needlessly and to accept I have a normal thyroid. I already have an autoimmune disease as in severe form of Rheumatoid arthritis, and my mother, when I was very young had myxoedema and was left undiagnosed for many years, in fact she was sectioned at one time before finally going into a myxoedema coma and only then being diagnosed. My great grandmother and grandfather both had an underactive thyroid. Am I worrying needlessly? is it all in my head? I asked for further tests as in antibodies and was refused and told I may want to think about a depression test!!!
0 likes, 14 replies
dwynwyn sarah72260
Posted
1.9 is well within normal limits with the one caviat that I have been told that everyone has different thyroid funciton so 'normal' can only be confirmed if a test was done before symptoms appeared, which is almost never the case.
The symptom list for hypothyroidism is so long, there are lots of things that can overlap with it, depression is just one of them. If you don't feel depressed don't listen to that suggestion.
Sorry to hear you have RA, what a horrible illness to have, it must be very hard for you. I hope you can get more help soon.
sarah72260 dwynwyn
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dwynwyn sarah72260
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libralady13 sarah72260
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can see why you would be concerned. Whilst your TSH 1.9 seems fine and I would question if 5.5 would still be in the normal range as I know some doctors/labs have changed the range to upper limit of around 3 with optimum level 1-2 which you are. That said there are folk out there all within normal range but still having symptoms, or those on levothyroxine but under treated for them.
You don't mention if you have symptoms and you will have enough to deal with
with your RA. It is bad that they mention depression and fob you off. Can you ask to be referred to a endicrinologist (not right spelling) for a full thyroid function test.
You could mention about your family history and especially your mums history.
I hope you can get some help don't let them fob you off until you afre fully satisfied with what they say.
sarah72260 libralady13
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libralady13 sarah72260
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I get angry the way some doctors treat their patients. You do seem to have many of the symptoms of a thyroid problem. I was very lucky when I was diagnosed over 20 years ago (now 66) my doctor knew that my mum had low thyroid and my son being diabetic, so tested my after I complained of fatigue
feeling the cold and aches and pains. He could so have easily put it down to oncoming menopause, having lost my mum to cancer and having a job,home and
husband and 3 teenagers to look after. I think that sometimes us ladies have to fight more and not be fobbed off as hormonal etc. I notice you said that your blood sugar ws 6.8 that seems high if it was a fasting test or at least border line. Maybe you are right and will have to get a private complete thyroid function test done, but you should not have to. Have you looked at Thyroid UK. You might find something here. I could go on and on I think it is dismissed as a unimportant condition just take your tablets and you will be fine. Might be for some but it is not as simple as that. Sorry to go on. Hope you can find a way to get some help. As you say always someone worse off. Take care, keep in touch on the forum.
Carol
sarah72260 libralady13
Posted
Twenty years ago when you were diagnosed, seems like an entirely different age with different ways of doing things with doctors thinking for themselves , now it's all high tech and become very impersonal and of course all the cuts within the NHS. When my mum was suffering it was 1959/60, but her symptoms were so severe she was sectioned as they obviously thought she was psychotic, when in actual fact it was all down to not being diagnosed. When she was eventually put on Thyroxine, she did make a recovery of sorts, but ended up having a stroke. It was my granddad who secretly gave her thyroxine as he was sure it was her thyroid and only then did the doctors do something.
I just need to make sure, then I can move on, as I have enough to contend with the rheumatoid. You have had a lot to put up with too and I think we ladies do try to keep everything "normal" for our families and sometimes that comes with a price, but at least we make choices.
It's been lovely talking to you Carol, and yes I will keep in touch if you don't mind. I get a bit slow on my laptop as I have to use voice recognition as my hands are badly affected, but with my husky voice just now it's struggling to recognise me!!
I'll go and have a look on Thyroid uk and see what I can get from there, so thanks for the link.
Take care
Sarah xx
glynisrose sarah72260
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Tanzi sarah72260
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libralady13 Tanzi
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My doctor says it is nothing to do with VD3 but I am not so sure. Do you know anything about this? Unfortunately I have a lot of other medical problems so it is hard to know what sympton is caused by what condition if you know what I mean. As you say all gp's are interested is that you are in range. I know from my last TSH that the range the lab uses the upper limit is around 4. I am in Greater London you would think they would know about new ranges. All they are interested is that you are in range. They are frightened of giving you too much even if you still have symptoms. I did have a gp years ago now retired who was a bit more helpful he was prepared to play around with the dose according to how you felt. Sorry to have gone on a bit I wish you and all on this forum the all the best.
Tanzi libralady13
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PS I'm libra :-)
libralady13 Tanzi
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All the best
Jopo sarah72260
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I know this is old... But did you ever get to the bottom of this?
I tick many boxes for hypothyroid but have a level of 1.6 so am deemed fine and my symptoms put down to stress. I know stress can do some funky things to the body, but this stress isn't new, everyone has stress, yes I may have a lot right now, but I'm a 36yr old woman and I should feel like this, I wake up bone tired and feel like I am being fobbed off as it being stress. I have 3 youn children to care for and this is not helping. Can stress cause a horse voice?! I am living in Spain however so have the lost in translation to deal with too. Though we have found their health service to be good and usually better than the nhs.
I'm wondering about private testing for free t3 & t4 & if it's worth it.
youkon1988 sarah72260
Posted
My results were ft3 35 ft4 55 and tsh was .0001
Doctor told your thyroid levels will normalised in two months
Antibody test
Tsi came back negative
Tpo came 102
Thyroglobulin came .4
Now i am feeling cold nausea and loose stool.
Not well . I dnt know if i am gone into hypo or i have hashimoto
I have been struggling from 6 years and doctors couldnt diagonose anything for me properly .
Did endoscopy as well and nothing came up except small Haitus hernia and doctor said its normal
When i was hyper i didnt have any indigestion problem but reflux problem. Now my last test came normal ft4 1.4 ft3 3.2 tsh .01
I want to repeat my results again to see if i am hypo. I gained weight back to 56 kg from 51 kg which was droped when i was hyper.
Doctore says high tpo are normal . Its usual in mist of people.
I dnt know what to do
Right now my nausea is bad daily early morning and i burp alot as well.
Trying some lemon apple cyder vinegar or fennel tea to balance my digestion. Ginger is good for nausea as well. All these remedies i am using to keep going
Regards
Youkon