Tsh levels?

Posted , 6 users are following.

Hi, I'm new here and have never wrote on a forum before. I hope someone can help. So I got diagnosed with hypothyroidism a month ago, was so low I just cried as was so happy that there was a answer for why I was feeling the way I was, anyway didn't know anything it, since reading on the net I have seen about levels, spoke to a doctor on the phone and he said my Tsh level was 99.9 and he said that was really low. To me that's a high number. I'm so confused. Hope someone can help me on this ??

0 likes, 7 replies

7 Replies

  • Posted

    Thats really high for tag (as I understand it). Could you have misheard? Maybe 0.99? Idk, seems strange from everything I've read x

    • Posted

      Tag???? TSH
  • Posted

    99.9 is crazy high!! Are you sure your doctor said that was low? Maybe he said your thyroid hormone levels were low? TSH (thyroid stimulating hormone) is high with hypothyroidism, since your body is trying to signal your thyroid to make more hormone (unsuccessfully).
  • Posted

    Hmmm maybe I did get it wrong, he was telling me loads of numbers and said that he wasn't surprised I was still feeling rubbish and my TSH levels were really low. I'm so confused with it all x

    • Posted

      If you're able to post all your numbers we could help you understand them. With a TSH of 99.9 yes you will likely feel like garbage smile I hope you start feeling better soon with treatment. 

  • Posted

    Hi, confusing ain't it?

    This is how it works.  The TSH test works in reverse.  High TSH means very low level of the actual thyroid hormone.  So with a high TSH you are hypothyroid.  You should go on Wikipedia and read about it.  Sounds like you definitely need thyroid meds.

    All the best.

  • Posted

    You can read books about thyroid problems and learn a lot. I found some on Amazon and pintrest gives ideas on some help. Good luck and make sure you get the right test and doctor. Thebook will educate you enough to ask questions and thats a way to know if you have a good Dr. If your'e Dr. Won't answer questions go else where. The number you mentioned has to be wrong. There is a lot to learn, if you really want answers. A Tsh test alone is not enough, my first Dr. Only did this test and I payed for it. Truly hope this helps, good luck Barbara

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