tumor fear now ! Alice and wonderland syndrome

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When I was younger I used to get what was like everything seems small and I seem bigger and iv had it on and off but very rare well iv just got a one side head and eye and temple pain with this I was go ogling to see if anybody had it I found one forum where nobody had been diagnosed but one person had and said it's called Alice and wonderland syndrome and then I found it it's a real thing I thought they was joking but with my breathing problems ect I'm now scared incase it's brain tumor as it says they can cause this and also with me having this head pain and pressure all the lights seems really bright too it's lasting longer then it ever has does anybody else suffer this ? I never told anybody because I have a stigma so I thought it was to do with that

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  • Posted

    Sorry I saw your post and was thinking the exact same thing about the Alice in wonderland syndrome today at school. I used to feel a lot when I was younger and the tele would seem 10x further away then it was. By mentioning a stigma do you mean astigmatism because you could be short sighted or something? I've been having the same struggle as you for a few months now about having a brain tumour and by knowing I felt this same feeling about the Alice syndrome year ago it helps to reassure me that I would have had greater symptoms or having a tumour at this point. Any other sytmptoms you have could be down to migraines if you suffer from them? Hope you start to feel better soon though as I know what it's like to constantly feel like you're dying.
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    • Posted

      Yeah that's what I meant lol got one very lazy eye ... I feel like a physco when I wrote Alice in wonderland syndrome but I honestly thought this person was joking until I read it up and yes it feels as though everything is far away although I feel really big it's so strange I did think to myself if it was a tumour I wouldn't of had it when I was younger and still be here now yes I do suffer migrain but it's strange that I got them both together cause I never put them together as a link before but I have just read up migrain can acually cause this Alice thing it's do strange and thank you so much for your reply everyday is a struggle and a new symtoms or a new find of what I can be dying from one big nightmare ­čśĽ x
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    • Posted

      Have you had your eyes tested recently? Your eyes can be a massive indicator or your health as well and the optician is able to see if you optic nerve is inflamed due to a tumour. You don't sound mad thinking these things as for someone with anxiety they're normal everyday thoughts. You just need to keep making sure they're kept under control as if you did have any thing wrong with you it would be obvious by now. Have you been under any larger forms of stress recntly to cause more migraines or even caffeine can sometimes? Your welcome, comments like this help me a lot so I just wanted to try help other people on her too! You really are not alone in this! X
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    • Posted

      No have not had them.tested since I was about 13 I used to have panic attacks when they put the light in my eyes everything used to go purple and I'd see like spider veins all over in my eye sight so I never wanted to go my parents used to have to drag me crying I suppose it then turned into a fear of going lol

      It's acually my time of month and I do get hormonal migrain so does explain it just can't help these horrible thoughts xx

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    • Posted

      Maybe if you feel up for it you should have an other eye test, it will help to ease your thoughts further if you're still worrying at lot. It is very hard to get these sort of thoughts out of your head but the chancing of having a tumour are tiny and one thing I've learnt is to never Google your symptoms. Your brain can actually trick into thinking you have symtpoms sometimes. Hope you do start to feel better and it must be so annoying having period problems like you!xx
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    • Posted

      I will book a eye test just to put my mind to rest also because it could be something to do with my eyesight and I am supposed to wear glasses but don't and haven't ever lol my own fault it is annoying g but something I have to deal with wish I new which days the migrain was coming though can't prepare for one there horrid xx
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  • Posted

    hi ive never heard of alice in wonderland syndrome but i suffer from shooting dull pains in my head and also achyness around my temples and eyes it could be a number or things causing your pain other than a brain tumor and rarely brain tumors cause headaches but sometimes they do when the tumor is big enough to apply pressure to the brain tumors usually cause serious disabiltly and i also get pressure behind my nose and head  but think its a side effect from my medication 
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