Turp operation or laser ?or leave alone?
Posted , 93 users are following.
Hello there I am 59 years old, I have been diagnosed with bph for several. Years now , psa ok around 2.5 checked every year, symptoms getting worse, peeing several times during the night , also severe retention if leave it too long when need to go .do not leak! (Yet) and would appreciate feedback from others who have had the procedure ( good and bad) The alfuziin 10 mg tablets seem to make little difference, and wondering whether to go ahead or carry on.
6 likes, 975 replies
emil54651 graham30431
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john65875 emil54651
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Hey Boys!
So many different procedures, so many different outcomes!
It's like buying a lottery ticket . You never know what you will get but you still lost your dollar!
This is a tough decision!
John
keith42667 emil54651
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I don't know if I trust my doctor or not. Only saw him for about 5 minutes and he gave me a GL dvd and pamphlet. Then he scheduled me for pre-op in 2 weeks. He said "I'm glad you came in"... which could mean "I'm glad you came in because you need help" (which is what I took him to mean) or it could mean "now I can afford a new car". I've been in there twice now with an appointment but have only seen his female P.A.
kenneth1955 keith42667
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I don't know about you but that seams like it is to quick. I would wait and see another doctor. Do you do any other test. Having 5 minutes of a doctor time to make that choice is not right. When he talk to you in that 5 minutes did he tell you anything... I think a second oponion is needed Ken
keith42667 kenneth1955
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Yes, it seemed that way to me. Thats why I waited. CIC seems to be working well for me; thank goodness there was advocacy for long-term use of this method because I still have all my options open. I did schedule a cystoscopy for after the 1st of the year. I just wonder what exactly the obstruction is even though its probably your typical BPH. The onlly test I've had is the gloved finger up the anus twice and both doctors agreed yes, my prostate is swollen. I got prostatitis probably due to urinary retention a few months ago but that as well as some other conditions have cleared up now that I've been catheterizing.
kenneth1955 keith42667
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GentlemanJim graham30431
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I am self cafeterising 4 times each day knowing that I should be doing but I dont get the sensation of wanting to go. If I leave it long enough I begin to feel bloated around bladder area then am able to pass around a third of what is there. I have electected to have the TURPS op and hope that it is going to cure my problem but most people seem to have the opposite problem of wanting to go all the time. I never need to get up in middle of the night. I wonder if anyone has had a similar problem ? I have been taking advodart for over 6 months with no change so far.( This is medication to reduce prostate size ).
jimjames GentlemanJim
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Your symptons are not unusual for bph/luts. Yes, some of us have urgency, but some have almost no sensation or signal to void because our bladders are stretched/flaccid. I was in your position four years ago and decided to do nothing (other than self cathing) because I didn't like the risk/side effect profile of the surgeries being offered. That doesn't mean people aren't happy with TURP, but do your research so you know what you're getting into. As to self cathing, the key is to keep total bladder volumes under 400ml. That would the the sum of your catherized void plus any natural void preceding it. If four times a day does that fine. If not, I would increase frequency. No guarantee, but if you follow that script and decompress your bladder, it's possible that more sensation will return to your bladder and it will start acting and signaling you more normally. It did for me.
Jim
kenneth1955 GentlemanJim
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Jim. Are you sure it's your prostate that is causing you the problem. To me it sounds like it's your bladder. Please make sure before you have something done that is not going to fix the problem and cause you more problems to deal with. Has long as your peeing and doing the CIC you should be fine. Don't cause yourself more headaches.. Please get more information Ken
jimjames
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Ken makes a good point. Assuming you haven't, before you consider any surgery, best to have urodynamic testing done. It will help differentiate between prostate, nerve and bladder issues and therefore help point you toward appropriate treatments.
hank1953 GentlemanJim
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Sorry, but at your age, I would avoid surgeries unless it's absolutely necessary, especially TURP, which can have a brutal post op recovery. Instead of advodart, you may want to consider an alpha blocker to help you with CIC. Hank
kenneth1955 GentlemanJim
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What we are trying to tell you is make sure you fine out what is causing the problem before you make more. Don't let your doctor talk you into anything. Did he tell you that it will fix the problem. Do you know a doctor can tell you what he thinks may fix the problem but in realty he does not know if it will. But after he cuts it out it's to late. Good luck..Ken Here is something my Urologist took me. He said that the TURP is a last resort procedure. I don't think that your there yet. Please get as much information you can God bless Ken
bob120 GentlemanJim
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GentlemanJim graham30431
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michael_63949 graham30431
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I’m 68 with long history of urinary issues. I was getting up every hour so my urologist “gave in” and performed a TURP. He was for a long time worried about a cancer diagnosis we now know for sure was inaccurate. Anyway, he did his job. And well though he was confronted with a nasty work space when he got inside me. In his words “and awful mess that looked like it may have been infected (non-bacterially) for 10 years.” After about six weeks I was p*****g like a 20 year old, sleeping and comfortable for the first time in decades. But..... and here is why I share this... my body has slowly returned me to where I was before he operated. For all the effort (and yes some misery) I’ve gained virtually nothing as far as the working of the machinery and comfort. I get up every hour or so at night and then can’t get started and never empty. During the day I am required to guzzle water both for the bladder and b/c I had a kidney stone a year ago. So... I live from bathroom to bathroom once again.
Neither alfuzin or anything ever helped and they are not helping now.
It’s just a bad break and there is no next step. this is as good as it gets. I’m glad I begged him to try it and would do it again if I had any reason to believe it would help. But I don’t. Such is life. Others have their physical burdens and many are worse. I will take it a day at a time until I enter that one last ,permanent, sleep. They hate to admit it, but physicians have their limits. A lawyer can’t win every case and medicine can’t fix all ills.
So, I don’t go to plays or movies or football games. I am increasingly a homebody. But I swim laps every day and eat as healthy as I can. I don’t kid myself on what this means nor do I cart around a false expectation of every being "cured.” If I get to live out my days no worse than this, I’ll take it. I had a great run even with a host of ailments, surgeries and the ever-present problems no doctor could explain. I lost my marathoner-wife at 45. Healthiest person I knew died suddenly of an aneurism. It put all life in context. In my humble opinion we have been bred to over-expect good health. We are as frail as we are resilient. Good luck and let me hasten to add, I the outliner. Nine out of ten patients do very well and most of them for all time.
I hope one man’s experience and thoughts are helpful.
jimjames michael_63949
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Have you looked into self catherization (CIC)? CIC is an easy to do and learn technique that empties your bladder completely and quickly, so you be able to go to plays, movies and football games, just like before you started having issues. A lot of us here do it and we will be happy to help you get started.
Jim
hank1953 michael_63949
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Very good philosophy ! Yes, life is a gamble. At least you aren't worse off than before TURP. Hope you'll find a solution for your problem. Hank
Camster michael_63949
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There are some theories that prostate issues can be caused by low-grade chronic infections. They can be non-bacterial as well as bacterial. From what I've studied, I do think there is some validity to this for some men.
kenneth1955 michael_63949
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bob120 michael_63949
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Hi Michael. I'm 71. I can sympathize because I've been there. I have one of those prostates that grows like a weed according to my urologist. He gave me a GL laser in 2012, a second one at the end of 2013 and a TURP in 2015. At the end of all of that my prostate was larger than it had been before my first GL, but my urination symptoms and PVR have been good so far. Apparently it's not the size of the prostate but the size and position of the obstruction that causes urinary problems. 6 months after my third surgery, the TURP, my prostate was 195g,, but I had no symptoms and my PVR (post void residual) was just 32 ml. When I started the odyssey in 2011 my prostate was measured at 128G. and my PVR was 400ml, and I was needing a bathroom every half hour to 40 minutes around the clock. 6 months after my turp in 2015, I decided I didn't want a prostate operation every year so I asked my urologist to put me on dutasteride (0.6mg a day). He was reluctant, citing possible side efect of growing breasts, etc., and wanted to prescribe a less effective drug, finasteride, but I was insistent on trying the dutasteride. I've been taking dutasteride for 2-1/2 years and have had no side effects. Presently my stream is decent and I go several hours without a bathroom visit. I don't have any urgency. At night I usually go 2 or 3 times during 8 hours of sleep, in a couple of 1 liter plastic bedside urinals I keep in a basket by my bed. Sitting at the edge of my bed in the dark to relieve myself, I can get right back to sleep. Can't help but wonder what would have happened if I had just started taking dutasteride around 2010. Maybe I would have avoided those three surgeries?
bob120 Camster
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