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Over the past months (years actually) I have received invaluable advice from so many here and I am very grateful. Can't imagine what I would have gone through without this forum.
Anyway, had a bipolar TURP in early April and have posted here about the progress. It definitely was a success, in that I can empty my bladder much more easily - flow stronger, takes much less time to empty my bladder and I have had no issues with incontinence. My uro measured my PVR two weeks ago and my retention was 0 . Had been in the 170-200ml range prior to the surgery, so the TURP worked!
However, my nocturia continues with no progress. I am still getting up at least 6-7x per night and sometimes more. My bladder always feels irritated except right after I have cleared it after my hourly trips to the bathroom. I would estimate that I am going to the bathroom 20-30x per 24hr period.
My urologist wants me to wait this out for a while and see if the issue will resolve over time. He has suggested a treatment where botox is injected into the bladder muscles and that helps for about 6 month. After reading about this I have decided it isn't for me - fairly high probability of a UTI and need to self cath (back to retention again).
Other treatment possibilities include PTNS (percutaneous tibial nerve stimulation - like acupuncture) which I tried last year. It was slightly helpful but required 12 weekly 30 minute sessions - had to pay for each session (copay). Yet another treatment is to have a battery operated device implanted under the skin that sends electrical signals to the nerves that control the bladder. Again, not something I would do at this point.
I am taking trospium and that is supposed to help calm the bladder, but in my case, doesn't seem to have any effect.
So, my question for this forum is: has anyone had any form of treatment for BPH symptoms that resolved the flow/retention issues but didn't resolve the frequency/urgency/nocturia issues? What happened over time? Did the bladder calm down eventually, or is this bladder situation permanent?
Just took the IPSS test again and it came in at 28 - was 30-32 before the TURP. 28 is still very high. My sleep is so disturbed that I wake up tired every morning and never feel right during the day as a result. Many here report good sleep outcomes after various procedures. Hoping that eventually I will be OK but at this point am very, very concerned.
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