TVT Operations....How many of you have found this successful?

Hi barbra.

Glad to hear that it worked for you, too. I wonder how many of us (percentage) got a good result from this. Would also be interesting to hear from those who were the early *guineapigs* for this operation, as they would be...10 years into it? How are they getting on now I wonder?

I must have been one of those early  guineapigs as my op was in 2003 and problems started 14 months after my op and getting worse all the time, but what I can't do is to sort out what is directly thyroid related and what is directly related to the mesh TVT, but I do feel that you simply cannot put something that is not your own flesh into ones body without it causing a reaction and so related to autoimmune problems.

Yes, I would imagine that if you have autoimmune issues, a foreign body would not be a good thing to have inside you.

Did the thyroid start playing up around the same time?

I already had Hypothyroidism before the mesh operation in fact I think it was responsible for my ill health in childhood and the reason why I was hospitalised for both pregnancies, but was not diagnosed until  those babies were in their teens, but have since found it to be a problem in other family members. I was also sterilised, so being Hypo and the sterilisation would have in turn led to incontinence Cystocele and rectocele. Eventually when I went in to have this surgery they debated as to if to go ahead as my BP was high, but as it went down next day they went ahead and I experiance a lot of pain in lower back and they diagnosed a UTI and I also had problems passing urine. I have had several UTI's since, but at the time it was thought they might have put the tape in too tight, but it was left like it. Things then started to improve and I started doing some part time jobs and purchased an electric assisted bike so was active, but went downhill 14months later with a chest infection put on antibiotics and on doing one of my jobs delivering papers I had to give up due to lower back pain and to ride my bike made me feel unwell. I suffered from pain in my bladder and I found that stopping the Thyroxine caused the pain to go but it did come back. Yes I have had problems with my thyroid treatment ever since including NDT. I also went on to have a bad fall on a bus and ended up in a lot more pain eventually being told it was Polymyalgia and some, but it gets confusing when thyroid and mesh sufferers are diagnosed with Fibromyalgia. What I do feel however is that this pain in my right groin which can get too bad to put my foot to the floor is the cause of my muscle pain in turn caused by the TVT. Having had MRI SCAN, X-rays and Ultrasound of my hips they say I need new hips but now the results of these along with the VCMG have in turn confused my GP. I can only take the advice of an Osteopath who gave me a far better examination than the NHS who says my hips are not too bad.

How many others are suffering from this groin pain that feels like something sharp sticking in.

You would think they could all come to the same conclusion! How confusing! Hipe replacement is not something to undertake lightly!

 The Rheumatologists have followed each others conclusions. The tests that were done the results have confused my GP. Some of my results were not sent to me or my GP so I pushed the hospital to send them to my GP.

What I also want to know is if they saw the arms of the mesh on the MRI scan as they told me that the mesh looked OK, but which bit. This groin pain feels very sharp and that it pulls on the bladder.

Dear Kathleen

I would advise getting a copy of your medical records from the hosspital concerned and seeing what anaesthetic and other drugs were given.

Did you ever have any antibiotics in your life?

If so which ones?

DId you ever have any drugs that have the side effect of musscle/joint pain, have you ever taken statins or codeine or NSAIDS?

I would avoid surgery if at all possible. Have you ever had a Dexa scan to exclude osteoporosis?

Have you had a bone profile done?

Hope you do not mind all these questions.

Jean x

Jean I have got all the records I can get hold of, but my early records could not have been forwarded from a Doctor who struck me off for asking for a second opinion on my kidneys. I was informed that I had a Dupex kidney but nothing could be found to account for my symptoms which I now think were due to thyroid.I even have a diagramn done later of a cystoscopy which shows where the two ureters on one side enter the bladder so 3 in all. On more recent ultrasounds they cannot see a duplex kidney and through a complaints procedure at my local hospital they said they could not understand why one of their specialist had produced this diagramn and told me it was a red herring.

I am allergic to Peniccilin found out as a youngster, but have had several other antibiotics.

Yes they have prescribed Codeine, but a female GP struck me off over this as a colleague of hers prescribed codeine and I ended up pulling a warden control cord and they got an out of hours Doctor to call who decided to come out, and he said I had an irritable colon and that it could wait until the Monday, but this GP was angry as it had cost her £60 and she said she would rather see me several times a week than call the O.O.Hrs. About three times later still with this abdominal pain she then rather angrily said I was seeing her too much. Its no fun when in pain and a GP tears into one like it because they cannot find out what is wrong and it is upsetting. I complained and ask if I could change to another GP there, but it was refused and I had just signed on at another surgery when I got a letter from Family Practioners committee to say she had struck me off and no reason for this was given. This next surgery although the GP did not agree with handing out antibiotics, he did hand me some low dose statins but what good are they for ones heart if they make you feel angry so no more of those. I also had a bad chest once and happened to mention that as a child they gave me some red medicine.He then said would you like some of ours (they had their own pharmacy). Of course it had codeine in it and it caused constipation and I ended up in bed with a bad chest. I summoned O.O.Hrs and at the time I was taking liquid Evotrox for thyroid so at first he gave me a prescription for liquid Trimothoprim, but I told him that I had nobody to get the prescription so he goes out to his car and brings in a bottle. One dose caused me to have a rash, so was told not to take anymore. This rash was like small blisters that itched and went into a red looking area very much like my allergy to rubber gloves.

I have had 2 or 3 DEXA SCANS and within limits. I think I have had a bone profile done and Rheumatoid arthritis has been ruled out. The CRP and ESR being raised is what caused them to diagnose Polymyalgia, but  now the Rheumy cannot explain it as I still have this pain but CRP and ESR were not that bad. I will not allow them to give me adrenaline injection again, but I see to that some drugs can contain MBT which is the cause of my allergy to latex.

I only take Paracetamol when absolutey needed.

I am very cautious of any drugs now.

How does thyroid link in with any of this? I had TVT before my total thyroidectomy due to cancer back in 2012. I had the mesh surgery a year before my thyroid. I have had awful burning kinds of pain after the op but it has gotten worse although it is intermittent. I would not say being on Thyroxine causes issues like these though.Everyone blames everything on thyroid!! Although being on a replacement does come with its issues, bladder issues like this ain't one of them. I definitely think the mesh is to blame here.

My groin pain feels like I just got done doing the splits without stretching first. I really can't do the splits anymore though. Glad I'm not the only one experiencing this.

God bless

Sarah

I have never even heard of this device but I am from The USA

I have terrible OAB. I was so distressed. I am in my 50's. I am a nurse. I had some old hormones

Estrogen andProgesterone.

I read if low on hormones u can

can suffer from OAB. I took the old hormones the OAB is 95% better.

It’s not good enough I have the same problems. Groin pain +incontinance dozens of uti,s plus tape irosion into my bladder. I hope you improve .

Good luck x

A lot of women,me included describe it as Cheesewire pain

Yes, good point Kathleen.

Hiya I had a tvt operation 3 weeks ago my gp told me today I have thrush and a urine Infection so I'm feeling quite sore at the moment, I have Lupus (SLE) so it takes me longer to get over things and my immune system attacks my body and I have a underactive thyroid, and Diabetes.

I had my op early november. Ended up having 8 weeks off work after having 3 infections. The Antibiotics then giving me thrush for a further week. I am a type 2 diabetic that has been steady for 6 years. When i came out of op i had a level of 22, had insulin jabs overnight and got it down to 18. Left hospital a day later still at 13. The highest i ever had previously was 8. Now I'm struggling to keep my sugars down. Would be interested to hear if you think the operation triggered your diabetes to go downhill.