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Twice operated thyroidectomy and parathyroidectomy

Posted , 2 users are following.

mohammad4848
mohammad4848

I was suffering parathyroid adenoma and was operated in June 2012 , surgeon removed my left lobe and parathyroid adenoma. After 45 days of op my pth level was normal. But in July 2013 my pth level was again high second time my sestamibi scan was negative , my surgeon on 19.05.16 removed my right thyroid lobe. But biopsy repot showed that just colloid nodule was removed no parathyroid tissue and adenoma seen. After 4 days of operation my pth was 173 . I am to much worried , my surgeon told me he explored both sides but remained fail to find parathyroid. Please suggest me now where maybe my parathyroid ?

0 likes, 5 replies

5 Replies

  • elainec33
    elainec33 mohammad4848

    Posted

    So sorry to hear you are going through all of this and possibly unnecessarily.  Top surgeons say that intraoperative measuring is essential and only adds on another half an hour to the operation.  When they remove the adenoma, they can measure your pth whilst your neck is still open and if the pth does not go down significantly, then there must be an adenoma elsewhere.  I have a friend on the Hyperparathyroid group on Facebook who recently had to have a second operation because the second adenoma was missed and this makes it more dificult because of cutting through the old scar tissue.  I believe she had most of her thymus removed as did another lady as the bad gland was located there down in the chest area.    I wonder whereabouts you are and who your surgeon is. 

    Emis Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

    http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

  • elainec33
    elainec33 mohammad4848

    Posted

    I did reply to you about 7hours ago but I posted a link of a video showing where the parathyroid glands can be located but it's still waiting admin approval.  In the meantime come over to our group on Facebook "Hyperparathyroid UK Action4Change" where there are over 500 members all going through their own hpt hell and you will get a lot of support. 

    Regards

    Elaine

    • mohammad4848
      mohammad4848 elainec33

      Posted

      Thanks elainec33 , still I couldn't see ur link because of admin. But I have joined ur group.

    • elainec33
      elainec33 mohammad4848

      Posted

      I cannot imagine how a video done by an expert clinic showing where the parathyroid glands can be located is deemed unsuitable for this forum but hey ho, that's life.  At least you have the video now.
    • mohammad4848
      mohammad4848 elainec33

      Posted

      Good evening,

      Thanks Elaine u did a great work to send me a video, it is really a hopefull for me. I was disappointed in this situation after second surgery. But now I am just searching a experienced surgeon. Keep in touch.

      Regards

      Mohammad4848

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