Twitching

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hi everyone and happy Easter.  Approx two years ago I herniated discs which ultimately led to to my diagnosis of fibro.  As part of the disc problem I have lost some sensation in the left foot and also fingers but moving on two years apart from back 'ache' like you wouldn't believe and fibro flare ups I am doing well. until that is I fell from some steps.  Not from a great height, maybe 12 inches, but the fall resulted in 1 broken rib and multiple fractures as well as some impressive bruising.  When I first started getting around again following my discs problem I developed muscle twitching, quite pronounced in my limbs and body and neck.  This settled over the months and I was left with twitches when tired and resting or falling asleep.  Since the rib accident the twitches are back with avengence and a slight stutter, confusion and tiredness.  Anyone else with similar symptoms with their fibro?  Thanks for reading.

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  • Posted

    What do you mean by twitches? I have restless leg syndrome but if I don't take my tablets at the correct time I get violent spasms all over my body, and it is much worse if I am sitting down or lying in bed. Have you seen a neurologist? It could be the start of the same syndrome, which apparently often goes hand in hand with fibromalgia. The spasms are completely uncontrollable, and I have an absolutely irrisistible urge to move. It is IMPOSSIBLE not to do so. Are your twitches like that?

    The fibromalgia causes extreme tiredness, but if your muscles are twitching all the time that is exhausting also. The good news is that there are effective treatments for muscles that twitch. I take Ropinirole which is very effective but must be prescribed by a neurologist the first time, after which your GP can renew the prescription. Good luck with finding some relief

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    • Posted

      Hi Julia, thanks for the reply.  the twitches are like electric shocks that I have no control over.  Violent enough for others to see, not eye twitches that everyone seems to get from time to time but proper full on movements, sudden, and controllable.  I didn't see a neurologist, I went straight from surgeons to pain management, physio, hydrotherapy etc.  The rest of my care has been with my GP and six monthly appointmentswith Pain Management.

      Ive been in Gabapentin and Naproxen but have managed to decrease the amount I take but since the fall, everything seems to have ramped up.

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  • Posted

    Yes! The twitches are the worst. Sometimes I would get spasms that knocked the wind out of me. Other times its mild and some you can even see in my arm if I lean on it. They are frustrating and sometimes debilitating. They happen less often now but still getad that I don't have control over my own body.

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    • Posted

      Hi Kiki, thanks for replying.  Oh yes, knackering!  I'm taking pain relief and anti inflammatories for the rib pain at the mo and I'm waking up when they wear off but I could sleep for hours on end any time of day or night but although I'm asleep I am aware of the twitching.  Doesn't seem to bad when I'm awake unless I get stressed out or upset.  Weirdly, if I'm concentrating I don't twitch, always seems to be when I try and relax.

      like everyone, I hate taking tablets and I'm wondering if you have found anything that helps control or eliminate the twitching.  Getting old is bad enough without all this! Lol

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    • Posted

      Epsom saly and baking soda baths. Followed by Magnesium helped get rid of my restless legs and relax my muscles at night but I don't take it during the day or I would fall asleep.

      But after a while they did decrease in frequency and intensity. Don't know what or how I actually did it. But I did freak out the doctor when I had one and it was so bad that it knocked the wind out of me and I apparently held my breath or didn't take any new ones. He just started yelling breathe. I was just happy he could see what I was talking about and I wasn't crazy! Lol

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    • Posted

      Wow Kiki, yours sound worse than mine, far worse.  Today has been a bit stressful and I have spent the day in pain yawning my head off.  I've forced myself to stay awake hoping that having taken my tablets I might sleep through.  No such luck.  I will try your method and see if it helps.  The twitching really is the last straw as that is now aggravating my sore ribs and existing back pain.  Talk about these things are ent to try us lol

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  • Posted

    I am so sorry this is happening I have a similar problem. It is worse in my hands sometimes its like a tremor and sometimes it is when I go to grab something my hand will shake instead of actually doing what I need it to. I also have a spinal injury which is suppose to contribute to this. Good luck. I know how uncomfortable it came be
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    • Posted

      Hi Chrisecho, thanks for the reply.  Mine seems to be the opposite to yours.  If I concerntrate it doesn't happen.  It's when I relax or when I'm stressed and not thinking about what I'm doing.  We seem to be different ends of the spectrum but I guess that's nerve disturbance for you and at least we know that although they are t the same, they are similar so in a weird way justifiably normal given our health issues!!  I'm having a go at Kiki's recommendations.  Early days but I will stick with it.  Three nights ago I was in too much pain to sleep and was up from 3am.  Yesterday and today I have slept almost non stop.  This illnes is a bit like being on a roller coaster and you just don't know what's coming up next.

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