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Two and a half years of hell

Posted , 4 users are following.

alice84964
alice84964

Hi. 

For two and a half years I’ve been in pain. 

- going for a wee and not being able to start the wee, still needing to empty the bladder and not being able to, slow flow, immediate cut off flow.

- painful sex, needing to wee in certain positions, the day after feeling like there is a swelling inside.

- some days not being able to get a tampon in and also tampons hurting

-there is a bulge of skin at the opening of the vagina. 

I’ve been to see a consultant and he says after tests there is no prolapse but I’m sure there is. I wonder if there is a site I could send a photo to for a second opinion?

1 like, 5 replies

5 Replies

  • Rosa747
    Rosa747 alice84964

    Posted

    Hi. What type of consultant did you see? You need to see a urogynaecologist. They will deal with bladder and prolapse issues. Can you get a referral for a second opinion? Are you in the U.K?
    • alice84964
      alice84964 Rosa747

      Posted

      Hi Rosa. I am indeed in the Uk. I have been to see the urogyno and he is of little help except gives me drugs and tells me to come back in 3 months. 

      I know my body and this lump at the opening was not there before, I just don’t know where else to turn. 

      Thank you for your reply

  • Rosa747
    Rosa747 alice84964

    Posted

    If you aren't happy with the consultant then can you ask your GP for a referal to another urogynaecologist a different hospital? Can you google urogynaecologist in ___ (your area) to see who else you would like to see and reviews. I have found some consultants unhelpful and have been through 3 to get the right help!

  • lizzie60
    lizzie60 alice84964

    Posted

    So sorry you are in pain 😢Grrrr. Makes me so cross when medical people dont listen! You could ask your gp to refer you to a womens health physio. They should be able to assess if you have a prolapse and sometimes things can be really improved with pelvic floor exercises. Or you may be able to get referred to a different urogyn via your gp or choose and book system. Ask to be examined standing up as prolapse will be more obvious. Good luck xx

  • alice84964
    alice84964

    Posted

    Thank you ladies. I really appreciate you coming back to me. I just feel like I’m banging my head against a wall and just wish there was an answer. 

    From the age of 17 (I’m now 37) I was diagnosed with thrush and made up in my head pain until 2014 when I saw a doctor and was diagnosed with stage 3 VIN and had to have  a partial vulvectomy due to the years of neglect, I just see the cycle beginning again, 2.5 years of constant and crippling discomfort to be told there’s nothing wrong. It’s so sad. 

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