Two repairs failed

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Hi Ladies 

i had a hysterectomy and anterior and posterior repair four years ago, Then two years ago needed another repair. This lasted about nine months then prolapse again!!!! I don't have any urinary problems thank goodness but fed up with prolapse. as I'm 64 years old thought I would look at a pessary. Can't even have that as my pelvic floor so weak despite doing regular pelvic floor exersices. I also keep very fit walking, yoga and Pilates. Been told by GP a third op wouldn't work and have to live with it. Anyone out ther with similar experience, Would love to hear a success story 

 

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10 Replies

  • Posted

    I'm so sorry Mary to read your story.I couldn't bare to begin to know how you feel.I had anterior repair last April and it failed a month later.I'm waiting for another one this Summer. I pray to god my new consultant will fix me.I have every faith he Will. I'm sorry I can't help you but hope you get help..I have research a consultant near London who is excellent with prolapse that has failed more than once. Would you like his name? If so I'll pm you?xx

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  • Posted

    Oh no, Mary.  That would be so frustrating.  Did they send you to a pelvic floor physical therapist.?  Maybe they can't do surgery, but if your pelvic floor muscles are the thing blocking you from getting a pessary, that is something that should be fixable with the right help.  I also didn't think it depended on the pelvic floor muscles, honestly. It's supposed to be a snug fit when the muscles are relaxed.  I think I would get another opinion about the pessary, though I still recommend the PT.

    I remember there was a woman who was active here when I joined who had repairs fail and couldn't get another because she had a collagen disorder (Elhers Danlos maybe?) and she went the pessary route and was happy with it.  I think she ended up getting one she couldn't take out herself so penetrative sex was no longer an option, but it helped a lot so it was worth it.

    I hope you get a second opinion and they can figure out how to make a pessary work for you so you can get some relief.

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    • Posted

      Hi Dorry and all who have advised me. Many of the things suggested i have done already. Been to physio, always doing pelvic floor exercises, Pilates and yoga. lost over 24 i lbs in weight. I'm going to ask GP to refer me to St Mary's Hospital in Manchester now to look at options.

      Thanks to everyone for support. Good luck to you all in your own recovery path

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    • Posted

      Just a suggestion but have a look at Tasha mulligans Hab it website lots of info . I do Pilates too but I modify certain moves as it can put pressure on your pf. I live in Wigan . Where did you have your surgery ? 
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  • Posted

    So sorry to hear of your dilemma Mary. I have had 2 lots of surgery hysterectomy with anterior repair then another anterior with posterior repair. Having problems with scar tissue this time so worried myself about possibility of 3rd surgery if repairs fail again.

    I didn't like using the pessary, the permanent one was so uncomfortable I couldn't go to toilet and the second one worked for a while but then started to fall down and was a nightmare if I was out and about and couldn't access a toilet.

    Doing my best to be as careful and protective as possible with my repairs but think they generally last about 10 years as long as you dont put any down pressure on them.

    I agree with Dorry, maybe you should get referral to physiotherapist to strengthen your pelvic floor muscles and try a second opinion too.

    I hope you find a suitable solution soon.

    Phyl x💕

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  • Posted

    I agree with the others Mary.. There is obviously a weakness there to start with. Although the physio won't change the prolapse it Will help strengthen up your overall pelvic floor.good luckx

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  • Posted

    Hi Mary. I hope Matron sees your post and comes on with advice. Personally I would ask your GP for another referral, privately if you can afford the fee for a consutation as you will be seen much quicker then. Very few GP's know much about this sort of prolapse as it's specialised treatment from 'urogynaecologists'. So... this is what to ask for when you see your GP again. If the Consutant thinks it necessary he will deal with it on the NHS if you can't affored an op privately. I had a bad experience with a permanent shelf pessary, they don't suit everyone! As we get older our tissues, ligaments etc become weaker and less elastic as in my case. I'm 73. I'm going back for my 3rd prolapse surgery in May, just had the letter from the hospital. Some GP surgeries seem to be restricting referrals for what's called 'elective' surgery as it's not considered urgent in most cases. This is because of their budgets and not having enough cash for things like this which are charged to the surgery as when referrals are made as far as I can gather. It badly affects my quality of life now in many ways. I'm a very active, busy sort of person when well but not at the moment as the pain and pressure from prolapse, on my spine, hips and pelvis have affected my mobility so I can't walk far now or do much at all on bad days!  Also I've put weight on because of all this so get into trouble for that now too! Hope this helps you, go back to your GP and ask the question about another referral. Good luck, xrolleyes

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  • Posted

    Hi I have hysterectomy and repairs. Prolapse returned and vault prolapse. Using gelhorn pessary and it works well.

    Though took time to find right one for me. Ring, shelf and cube were no good.

    Have you tried a pessary? I am 58

    Hope you get something sorted

    Blessings Ruth

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    • Posted

      I had a vaginal hysterectomy, sacrospinous fixation plus anterior and posterior repair on May 4th. My initial recovery was so good, I felt  fine. I have to say it never crossed my mind that the surgery might not work, it's only since I discovered this site that I heard about failures! No one warns you about that. ?? I'm not seeing my consultant until September 23rd but am convinced the anterior repair hasn't worked, I have the same bulge feeling as before. I've not returned to my previous activities, badminton, step, horse riding so until I'm able to start these again can't tell if the leaking is any better. I'm beginning to wish I hadn't opted for surgery, at the moment I see no benefit. ??😥

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