Two Shoulders at Once! Really??

Posted , 9 users are following.

i am 16 months into FS in my left shoulder. PT, injections, fluid distension and really no improvement. Now I think it's in my right. At first I thought maybe my right just hurts from over use as the pain isn't too bad and my rom is fine, BUT when I do those lovely fast movements, I get that crazy, debilitating pain. OMG, can this really be happening at the same time? Has anyone else experienced this at the same time? How in the world did you cope? Thank. 

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  • Posted

    I'll bring up Xiaflex to my doctor. I am in Canada so although seeing an ortho specialist is covered, I'm told the wait can be 6-8 months if I'm lucky. My gp won't refer me until I'm 18 months in (im 16 months now) so that by the time I get in I'm 2 years with FS. Not sure if my GP will help much on the Xiaflex front or if I have to wait to speak with an ortho. Physio doesn't seem to be helping much. Doesnt seem to be making it worse either though. Physio is out -of-pocket so I'm mainly just doing rom excersies at home and seeing Physio every 4-6 weeks to get new exercises. I may go back to the gp soon to see if I can get something more than over the counter pills for pain and maybe she'll start the referral process early. Fingers crossed. 
    • Posted

      I'll keep my fingers crossed for you. We actually delayed moving so I could stay near my doctors. One if my blessings is being close to Boston. We have some of the best hospitals in the world, that are often on the forefront of medical advancement. That's if they believe you. My fracture healed and stayed rotated for 3 1/2 years because I had 1 doctor tell me my pain and disfigurement was all in my head. I, finally, got the right imaging study and the correction was made. It's always something, isn't it?
    • Posted

      Hi slibby:

      I'm also in Canada. I had read on the forum earlier that Xiaflex was approved by the FDA (USA) so I wrote to Health Canada last week. It was approved here November 2015, but not for us: "As per records and Product monograph, XIAFLEX (DIN 02388316) is approved for the treatment of adult patients with Dupuytren’s contracture with a palpable cord." It will be interesting to see if your doctor is open to it anyway.

      I needed to be on codeine for 3.5 months so I asked for it without Tylenol. That way I could choose to take the straight codeine with either Tylenol Ultra for day (it has caffeine) or a muscle relaxant at night. My doctor offered me regular codeine & long-acting too, both in the lowest dose, so I could manage the pain as needed. Such a difference once I got that prescription, though it's better to be done with this altogether of course! 

      ​Liane

    • Posted

      Liane, thanks. It will be interesting if my doctor will consider using Xiaflex for my shoulder.   Unfortunately, I cannot take codiene. And NSAIDs trigger my colitis so I'm really stuck.  I started Tylenol arthritis today as the pharmacist said it should last longer than a normal Tylenol. I think I'll have to see my doctor soon for something else. But I don't know what she'll prescribe other than a narcotic which I'm not so sure about. 
    • Posted

      Oh sorry, yes, I recall now your saying that about codeine. If you can't take oral NSAIDs, you might get away with Diclofenac gel. It's the stronger prescription strength of Voltaren for rubbing on the shoulder to reduce inflammation locally. I hope your doctor can think of a pain patch or remedy of some type to give some sure relief. Keep us posted. Liane.
  • Posted

    I am so sorry :-( I feel your pain... literally. I have only been dealing with FS in my left shoulder for a few months. Thankfully I received a depo medrol injection 1 month ago which brought my pain level from non-stop excruciating to almost complete relief. Unfortunately the injection started to wear off about a week ago and the pain is steadily coming back. I too feel FS coming on now in my other shoulder...my right shoulder. The twinges started about a month ago and like you I was very hopeful at first that the pains I was feeling were just from over using it...but I'm afraid that's not the case as the pain is getting worse, it is in all the same places as my left arm, and is brought on by the same movements that my left arm pain started with. I wish I had some words of wisdom or encouragement for you...unfortunately I don't...I just wanted to tell you you're not alone!
    • Posted

      Heather H,

      I just received my second steroid injection in the last three months. The first was cortisone, followed by Toradol, an NSAID injected into the joint, about a month later. Neither seemed to work. This time we went with the Depo medrol, just yesterday, or Friday, because it's now 3:17a.m., and I actually can't sleep. I am sore from the injection, but my pain is better if that makes any sense. I seem to be getting relief, much earlier than expected. Fingers crossed. Many of the studies I've read, say that Depo is their first choice. My left arm has very limited ROM, from a previous severe fracture of the proximal Humerus at the surgical neck. I had the,"joy," of one of my doctors at the famous Massachusetts General Hospital tell me my pain was all in my head! Long and very limited recovery there.

      So I am being the most compliant patient ever, with a new orthopedic surgeon. I REALLY want to get as much ROM back when this FS is finally resolve. Good luck to you! The Depo seems to be the one that ma helpn me be on my way to recovery. Fingers crossed for you, too.

  • Posted

    I am there two.  My FS on the non-dominant side started last fall, but I didn't see my doctor for almost 6 months.  Physical therapy didn't work, cortisone injection didn't work either.  The dominant side started hurting shortly after my initial visit to the doctor.  My primary doctor, my physical therapist and my sports medicine doctor said it was just strain from additional use -- bilateral concurrent FS is very unusual.  However, the pain pattern, the beginnings of issues with range of motion all point to FS.  In addition to the initial x-ray I had, I've now had an MRI and EMG to rule out other possible causes of bilateral shoulder pain.  So double FS is it.  I am really worried about being able to cope -- basic care, driving and working (I do a lot of computer work) were already very difficult!

     

  • Posted

    I went to my family doctor on Friday to get some help with pain and sleeping. As I cannot take NSAIDs or codeine I was sceptical of what she'd give me as I'm hesitate to start narcotics. She gave me cymbalta and said to take some tramscet for the first week or so at night until the cymbalta starts to work. Already, it has made a big difference. I am only waking up 2-3 times per night and am noticing less nagging pains in my shoulder. Just thought I'd share.
  • Posted

    I'm sorry you are going through this but unfortunately it can happen! I have a frozen shoulder that I have had for 2 years now and a couple of months ago I started noticing pain in my right shoulder. I haven't gone to the Dr. Yet for my right shoulder but all the symptoms point to the same thing! It really stinks.. I feel for you cause I know what your going through, take care!
  • Posted

    So I finally (after 16 months of this) got an X-ray done. My doctor hasn't done any imaging since I'm a textbook case of FS. But she needed images to refer me so had these X-rays done. Well luck me..... I also have calcific tendinitis! Because FS isn't enough to deal with! So in two weeks I'm off for an ultrasound to see how bad it is and if they can do something to help me. At least it is only in one shoulder (from what the X-ray says) even though the FS is in both. Anyone else had this?????
    • Posted

      My physio therapist thought I had calcific tendinitis and he was hopeful it was that because you can have an injection which breaks up the calcium as he explained to me. I hope you get some relief soon and at least with the X Ray now things should happen, take care
    • Posted

      My doctor told me about that too but says you need to be a perfect candidate. The calcium deposit needs to be on just the right spot on the tendon to be able to have that procedure done. And if you can't have it done, it is a very long recovery time, like 5-10 years. So I'm not getting excited yet! 🤔
  • Posted

    So had my X-rays and ultrasounds done on both shoulders. I have frozen shoulder both left and right, both shoulder have calcific tendinitis with the left should having a 1.8cm long calcific piece! And my right shoulder has bad bursitis and my left has mild. OMG! 

    Off to shock wave therapy on Monday. The hope is the break up this calcium and in the process relieve my pain and help rom. Anyone else had calcific tendinitis with FS? 

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