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Two year old with odd T4 and TSH results

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BeckyJayne28
BeckyJayne28

Hi, I have left a discussion on here before and everyone has even most helpful. But my little boy has had more tests since the last post so here I am again...

But of background. My son is 2 and a half and after being very tired and losing weight suddenly, we were sent for bloods. His blood results showed a raised T4 meaning he was showing over active? I think that’s right isn’t it? Anyway we were sent for more bloods and they came back with a raised T4 once again (even higher than the previous blood tests) but what confuses doctors was that his T4 was also raised and apparently, that should be low with over active thyroid? So we were sent for more tests! And the results are as follows (I’m afraid I don’t have the numbers in brackets so I’m sorry if these are needed. I hope you can help regardless!) 

T4 was 21 in May and is now 25

TSH was 9.32 and is now 9.12

The paediatrician is totally confused and is hoping to get some more knowledge from an endocrinologist in Manchester which is the nearest one to us. We are awaiting a phone call with more info. Anyone know if these results are really bad? Should we go private or is it something we can wait out until she’s got back to us (hopefully next week!) and does anyone have experience of both raised T4 and TSH as I’m sure that’s what the paediatrician is saying the issue is. You’ll have to excuse my ignorance with it all- it all confuses me and I’m trying so hard to educate myself but it’s a minefield! 

Thank you in advance. 

Xxx

0 likes, 9 replies

9 Replies

  • madge1979
    madge1979 BeckyJayne28

    Posted

    I’ll  message Linda187 

    Who will  very likely be able to help you and your boy beckyjayne  big much she doesn’t know about numbers and blood results ...

    Mx🌹

  • madge1979
    madge1979 BeckyJayne28

    Posted

    Beckyjayne

    Why can’t yiu get the numbers in brackets   ..  don’t you have copies of your wee boys results  ?

    You know they’re yours and they are obliged to give them to you ..

    It’s wirth phoning and asking for a printout ... or for email  from surgery .. I don’t understand why they are dragging their heels with such a young child ..

    Do you .., ?

    Mx🌹

    • gypsymichele
      gypsymichele madge1979

      Posted

      I have the same problem with my doctor. He gives me my test results but doesn't give me the brackets. I always ask him to please give me all of the test but they still print it out without the brackets. It's very difficult to get all of my test. And half of the results he doesn't put up on the mychart. So I beg for my test and he gives me what he wants me to have. It's a real battle nowadays to get all of the test given to me and never with the brackets.

      🤔😊 Michele 🌹

    • BeckyJayne28
      BeckyJayne28 madge1979

      Posted

      It’s a bit f a tricky one- we are struggling to find anyone privately who will see him because he’s not yet three. The last bloods were odd and the doctor wanted to wait five weeks before taking them again to apparently give his TSH a chance to come down as she seemed to think it can do that if it’s just the initial onset...rise right up and then drop right down again? Anyway, it hasn’t dropped. She is now having to seek advice elsewhere as she is not a specialist in this department. She is purely a paediatrician. I’ve told her to contact me over the weekend if she gets anywhere with the Endocronologist in Manchester. As for the bloods- they were given out to me over the phone. To request a paper copy I believe I have to put it in writing to them and then they will send them out. Which I will do, but will obviously take much longer which is why I thought I’d pop the results I do have on here right away. Thanks again. Hopefully we will have answers this weekend. Xxx
    • BeckyJayne28
      BeckyJayne28 gypsymichele

      Posted

      They seem very reluctant to give them out don’t they. I was just given these over the phone as I wasn’t willing to wait any longer so I think that’s why I only have a basic result. I have to request for a paper copy and it’ll be sent in the post I believe. Thanks for your comment. Xx
  • linda187
    linda187 BeckyJayne28

    Posted

    Do you know if it was regular T4 or Free T4 that was measured?  His TSH indicates HYPOthyroidism.  I know it sounds funny, i.e. high TSH numbers equal HYPOthyroidism, low TSH numbers equal HYPERthyroidism.  Usually for thyroid disorders, in Canada at least, Free T3, Free T4 and TSH are measured.  Doctors often do not look for a cause for Hypothyroidism but they should.  He could possible have Hashimoto's thyroiditis where antibodies from the immune system are attacking the thyroid gland directly.  Ask  your doc to check for these antibodies. The tests they would do would be anti-TPO and TGAb.  The anti-TPO if high indicates a high degree of inflammation.   If he does have that, it often presents as HYPERthyroidism to start and then burns itself out and results in HYPOthyroidism.  Also ask for a paper copy of any blood work done on him.  You are entitled to this.

    • BeckyJayne28
      BeckyJayne28 linda187

      Posted

      I don’t know actually Linda. I will find out. Thank you for your response. I will be mentioning these other tests that you’ve suggested. Thanks so much. Xxx 
    • madge1979
      madge1979 BeckyJayne28

      Posted

      I would certainly mention and and suggest that your wee boy is tested for Hashimotos  ... as it would explain a few odd things in his varying results ...  if it is that , it’s imperative that he receives the correct treatment as soon as ...

      Although , I’m sure you’re aware of that !

      Going Private is a great idea 

      If I hadn’t done so I’d still be left UNDIAGNOSED   ..even scarier when it’s a wee  one 👶

      I can hardly believe that they only send the results by post ..

        I collect mine from surgery  as soon as they get them from Hospital Lab as do many people I know .    

      Theyre absolute Timewasters 

      Sorry .. but that’s my opinion 

      Certain people should have priority .... and that certainly includes children of two years 

      Best of luck 

      Mx🌹

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