Two years later.

Posted , 6 users are following.

Just an encouraging post for those contemplating hernia repair using mesh. Mine was large with a 'dinner sized plate of mesh.' Drains, seroma aspiration (I think it's called,) infection in the scar and cellulitus which meant another hospital stay. BUT, that was two years ago and no problems since those. I can lift, but am careful, bend over, etc. I still hold my stomach when coughing etc and sitting up when getting out of bed. Just in case. It was an incisional hernia. Started as a small bulge and ended up enormous. 

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7 Replies

  • Posted

    Hello john01315

    I hear you. My incisional surgery was 6 months ago and my incision was only 2 inches in length. I can identify with you. I was told by my doctor it would take over a year to get back to normal. The incision still itches like crary, I'm still holding my stomach sometimes and it still hurts. It seems like it will it will never get better.

    Your incision is considerally larger and I hope you have relief soon. I have learn to be patient, as hard as it is. Be blessed and get better soon.

    • Posted

      Thanks Bonita. Yes, it does take a while and I'm always aware of the need to avoid doing anything risky. I sometimes wonder if it could have been done much earlier when it was just a bulge when I was standing. The original scar was just below my sternum to my navel and the whole length was opened up again. I don't have a belly button any more. I actually felt the stitches giving way a while after the first surgery and the pulling pain disappeared suddenly. I just assumed it was adhesions unsticking and thought no more about it. I wear a corset every day, just for reassurance probably. There is still a bulge but the surgeon says it's fat. Hmmm. Best wishes for a quick recovery! 

  • Posted

    Hi John (I am guessing you are not in the UK, I am),

    Thanks for your post. As with most forums one often only hears about the problems and failures and so it's easy to get a one-sided view of the topic.

    I developed an abdominal incisional hernia after surgery at the end of November 2015 to redact a section of my small intestine that had twisted and kinked. I had an infection at the wound site a few days after the operation and they had to open 50% of the wound and leave it open packing it with a seaweed compound to encourage healing. The wound subsequently healed but some weeks, months later, I’m not sure how long, I felt that something was not quite right since my “spare tyre”, which wasn’t big to start with, seemed to be getting bigger and at times it just felt "odd" in that area.

    Eventually an abdominal incisional hernia was diagnosed but my GP (NHS) refused to consider a repair saying the practice these days is to adopt a “watchful waiting” approach. I was not happy with that so I went for a private consultation where I was told that I had an incisional hernia in my small midline laparotomy measuring 4-5 fingers and divarication of the recti above the wound.

    The private consultant recommended a repair as soon as possible as hernias only get worse over time. He said it could be repaired using the open technique with a sublay or onlay mesh or with the benefit of a laparoscopic technique combined with the open approach to remove the sac and reduce the size of the defect, what he called “the hybrid technique”. 

    As the cost of having the repair done privately was prohibitive I went back to my GP and I have at last convinced him to refer me to the appropriate consultant to explore a possible repair.

    I don’t know what this NHS consultant will recommend or what technique he would use but I’ve heard so much on this forum about folk who have had long term chronic pain after having had a repair using a mesh that I am cautious about that approach. On the other hand I know that the use of a mesh decreases the risk of a re-occurrence.

    So, what to do? I have heard of a number of different techniques each with different re-occurrence rates, risk of chronic pain, etc. and I am trying to gain a layman’s  understanding so that I may make an informed decision.

    John, I hope you don't mind if I ask you a few questions:

    What technique did your surgeon use to repair your hernia?

    Is the mesh sublay, on the inside of the abdominal muscle wall, or onlay, on top of the abdominal muscle wall?

    What is the mesh made of?

    Any advice will be gratefully received.

    • Posted

      Hi Phil. Sorry I can't answer your questions but will see if my Dr etc can tell me. All I know is that it involved a lot of sewing, was quite fiddly and took some time. I reacted to the anaesthetic by dry retching etc which was a worry as I thought it would cause some damage. But it didn't. I live in NZ  in the south of the South Island, about as far away from the UK as you can go. But the health service is ok. As I mentioned before, it might have been easier if it was done earlier, but I'm not the only patient! Mr Dr was a bit vague and just said to 'keep an eye on it,' which was not much use. I asked about an abdominal binder and the advice was, 'if you want to.' I paid for a specialist, who said it needed doing and sent me to the general hospital. Anyway, I'll be in touch. 

  • Posted

    Thanks but I am not contemplating hernia repair . we went through that already, I am now, after 11 years of agony demanding the mesh used be removed, but thanks for your input.
  • Posted

    Hi John I'm glad to hear that you are having no more problems mine was never diagnosed as a hiatal hernia. but it follows all the symptoms. I feel like I'm getting a lot of resistance from the doctors they want to put me on Gerd medication they want to put me on Nexium without really finding out what's at the basis of it. a perfectly normal woman very healthy low blood pressure and all of a sudden I'm having these symptoms and they don't seem to want to examine it with a scope I have to convince them of things and it's very frustrating

    As I have said I am trying to heal it myself but I am very active and it's hard for me to keep still for a long period of time which I know I have to do to get well

    All best,

  • Posted

    Hi John01315:

    Thanks for the encouragement. I have a herniated incission from a spleen removal and had it repaired with mesh in Mexico this time last year. When I returned to the States I had the drain removed and that started a horor storey. It seems the wound became infected and they actually reopened it to have it heal from the inside out with a machine called Acti-Vac. This destroyed the mesh and

    I'm sitting here waiting to have it repaired a second time. I'm hoping all goes well.

    Best Luck

    Ron

     

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