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Type 2 Trigeminal Neuralgia

Posted , 6 users are following.

albrock31
albrock31

I have the more constant pain with if I'm lucky a few days with no pain and then a flare with sever constant pain that lasts for days. I'm taking Tegretol and I'm up to 400mg twice a day and on top of that Hydrocodone and Oxycodone for when I have severe pain. Today my Dr. he'll refer me to the pain clinic because upping the dose isn't going to help. Has anyone experienced Type 2 before and what should I expect at the pain clinic? I've been dealing with this for roughly 4 months and at times it feels like I'm losing my sanity and the Tegretol side affects or not pleasant, tired and can't concentrate at work....any help or just others experience would be helpful. 

2 likes, 54 replies

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  • ibrahim57343
    ibrahim57343 albrock31

    Posted

    Hi everyone

    Hope everyone found relife and enjoy life 😊

    Ive been told by my nero i have TN type 2 4weeks ive been getting pain on my tempel then sensetions aroung my eyes and cheek , no shock pains just

    Iam from london i think iam bit young fir this

    Its going to take over my life iam 29yro

    • valerie17599
      valerie17599 ibrahim57343

      Posted

      Hi Ibrahim, you are so young, i hope you find relief and joy in life I sometimes get the pain around my temple, and cheek area.

       

    • marlene36342
      marlene36342 ibrahim57343

      Posted

      Hi Ibrahim - Do not give up.  Did your neuro give you any medications for your pain?  I take pain meds every day and I do get some quality of life.  When you said that it's going to take over your life - it's a very difficult situation to deal with.  Since 2006 suffering with this horrific disease, I am certainly not the same person I was.  On better days, I do my best to have a great day because I do not know what tomorrow will bring.  My life has certainly changed but always try to be positive about something or anything.  This is all so new to you and I am deeply saddened for what you are going through.

    • marlene36342
      marlene36342 ibrahim57343

      Posted

      Hi Ibrahim - thank you for your reply.  Are you taking any meds to help relieve your pain?  Just wondering - meds can certainly help,
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