type B aortic dissection

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Hi My Mum who is 87 was diagnosed with Type B Aortic Dissection with a Intramural Haematoma and thickening of the aorta and Plueral effusion 5 weeks ago . The Specialist at the hospital said that she wold not make it passed two weeks. So far she has defied them !!! She is very pale and weak and becomes very breathless if she walks any distance over 5 metres, she has lost alot of weight as her appetite has decreased, she also has this cough which she describes as a tickle. My Question is are these signs that the aortoa is about to rupture or can she go on for a while yet ?? Its horrible watching her decline. We have been told that its like a ticking time bomb and could rupture at any time .

 

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  • Posted

    As I said elsewhere, she could go on indefinitely​ neutral​  Her Doctor / GP should have prescribed a nutritionally complete meal replacement to help keep her going smile Yeah milk based drinks they're really nice cheesygrin​ This profound decline is unnecessary sad

    What medications is she taking question smile

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    • Posted

      Hi Benny I know I must sound morbid , I am just so wworried about Mum and I am just so confused with the diagnosis, and the poor prognosis which was given to us from many specialists. She is off all medications apart from her GTN patch , her Bp is on the high side but lower than it has been . Mum cannot have any milk drinks due to her diverticulitis, She is a wonderful Mum and that is why I have taken extended leave from work to be with her everyday. I am going to ask her GP today if is would be benificial to re scan her to see if the haematoma has decreaed and if the plueral effusion is better or worse . It is just the fear of the unknown .
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    • Posted

      Your mum shouldn't be off all medications at all, and 'GTN patch' how kind of them rolleyes, her dissection is in a precarious state but obviously it's holding quite firm smile

      ​I've had a grade / type A 5+ cm dissection near / in the heart and it burst a little bit, no they are not a certain death sentence at all smile 

      She can't have nutritionally balanced milk drinks (with a banana / fruit) due to her 'diverticulitis' really who said question OK then, she should be on total peritoneal nutrition smile​ Anyway duh hello she is dying a diverticulitis​ flare up is the least of her worries cheesygrin 

      Look she needs to get back on the - at least - blood pressure lowering medication and no I don't give a fig what the Doctors are speculating about her long term chances you / she gotta think / take things day by day smile

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    • Posted

      Oh redface​ And she needs to get the meal replacement drinks down her (with a little fruit (for fibre)) as well exclaim biggrin
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    • Posted

      Benny , I stated my Mum cannot have any milk based nutritional drinks because of her diverticulitis as the cause er to have very loose bowels and abdominal discomfort . I am ensuring she has adequate nutrition but due to her condition and her lack of apetite she continues to lose weight, I am there everyday and bring in home cooked meals to tempt her, the comment which now has been deletedsad about me starving her is very upsetting. I would do anything to have my Mum with me for many years to come. I am only on this forum as I was after some information about the prognosis of my mums condition .
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    • Posted

      Yes and that's why the drinks should be taken with a source of nutritious fibre (like fruit), I'm talking at least 250 (257 for Ensure®) ml a day not litres!  And sorry but if she has adequate​ nutrition why is she losing weight? Look the choice is yours, theoretical loose stool and discomfort or starvation which is it? Home cooked meals are not going to ..., she can't digest the stuff! You don't need to tempt her you need to badger her, if you aren't badgering her then you are starving her, sorry it's that's not what you want to hear. The prognosis seems to be that she's doing really well except for the nutrition smile
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    • Posted

      There is such a thing as quality of life !!! She has alzhiemers and will not be forced to do anything , She eats around a third of her meals and she is able to digest her meals I bring in , she is at the stage of her life where her appetite is decreased , and if you are tired from a underfunctioning heart the effort of eating is sometimes too hard. I have tried ensure I have tried sustagen I have had a dietition involved but to no avail , and I do not appreciate you saying I am starving her. You should not be on this forom if you are constantly accusing people of horrilbe things like starving thier loved ones. People come on these forums to get advice from others not be accused .
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    • Posted

      Is she losing weight? Yes. Do you know exactly what she should be eating brand names and all? Yes. Is she eating these things? No rolleyes​ Great job cheesygrin
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