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HELLO EVERYONE! I feel a bit foolish asking these questions, I was diagnosed with PMR last March, but I'm so forgetful and seem to have an inability to concentrate.
When I read about all your experiences your all suffering so much, the daily aches and pains, I'm wondering why I don't them. ( dumb hey) Within 24 hours of a severe episode I was diagnosed and on 60 mg. It helped after a few days, and I now reduced to 9mg and holding there out of fear. ( a bit lengthy get to the point). My Doc has never talked to me about PMR only tells me my SED rate and how much Prednisone to take. Here comes the questions,
When you are having your pain is it because your reducing your Pred, or is it despite taking it your still having aches and pains?
Are you all confused, dizzy, unsteady, shaking ( people notice), dry mouth skin and hair, bad nails, cry over sight things and weak. It's hard to shower and do my hair, then my shoulder ache and I do feel weak. But no real pain, and/but I have had two episodes, one minor and one very severe at 7 mg and went up to 20mg as per Doc, now I at 9mg.
I'm a newly wed and he's great but my passion is GONE. UGH!
within the last days I've had a fairly painful ache at the back of my head, behind my ear. regular headache meds don't help, so I took a pain pill I have for my back, and I was able to sleep. PMR GCA? I'm calling PCP requesting blood test.
Of course I don't remember all the questions I wanted to ask, I need to start writing things down. btw I will be getting a new PCP and finally found a Rummy who supposedly know a lot about PMR, appointment next week.
Reading all your posts is so helpful and a bit scary, thank you from the bottom of my heart. And yes I too realize how fortunate we are having Eileen, she truly is our angel!
I'm sure I'll be back!
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