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UC my experience

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Guest
Guest

Hi, I am 48 and was diagnosed with UC 2yrs ago, at this time my husband was suffering with terminal cancer and i thought my problems were the last thing anyone wished to hear about, but looking back on this now i feel it was probably brought on by the STRESS eventhough my hospital consultants maintain UC is not a stress related condition.

I have tried various drugs to try to control this but now 2yrs on i was told on Friday that there is poss no alternative but surgery. As my UC is till active and i have had no quality of life for two years. I do feel for anyone with this disease it rules your life, i don't go anywhere, unless i know the precise location of the loo, not even the local shops, sorry to depress you if you suffer, but unless anyone knows what this is like you can't explain.

rie

0 likes, 3 replies

3 Replies

  • Guest
    Guest

    Posted

    I too have been suffering for 2 years now and struggling to find a drug that stops the constant flares and bleeding-surgery has never been mentioned to me though so I imagine yours is more severe but please promise me you won't consider surgery until you hve tried EVERYTHING!! Remember the doctors don't always know everything and opinions from one doc to another can be very different! Make sure you really have tried every drug out there and experimented with other things like diet, natural remedies etc

    Surgery is a big step that obviously can not be reversed!

    Good luck x

  • Guest
    Guest

    Posted

    Hi

    I was finally diagnosed with UC 11 years ago although I have suffered with it since teens, now in my 50's.

    It is a nightmare disease and it totally ruins everyday life, I feel I have missed out on so much.

    Anyway I have been taking Asacol ( now only 1 tab a day ) for the past 11 years and I can honestly say I have not had a flare up since, very minor blips occasionaly but a slight increase in meds for a couple of days sorts it.

    I realise I am one of the lucky ones who responds well to the medication, I dread having a problem again but would happily go for surgery if it meant the end of it. I am also lucky in that I have a very good consultant who I totally trust.

    Good luck, I hope it all works out for you.

    :lol:

  • Guest
    Guest

    Posted

    Hi rie, I was diagonosed with uc 5 yrs ago which was initially treated with medication. However 2 yrs ago I had no option but to go for surgery and had my large bowel removed with a colostomy bag which I had for 9 mths before having a reversal. I wont lie, for myself having the 'bag' was the worst experience of my life - I became very depressed, refused to go out of the house, see anyone and was often in tears but as I said I had a reversal op and it was the best thing that ever happened, I got my life back, could return to work and once more have a normal life. I know this isnt an option for everyone and I thank god I was one of the lucky ones. I look back now and know - without being to dramatic, having the op and the bag saved both my life and my marriage. If I had to do it all again tomorrow knowing for those months how it made me feel I would go ahead and do it. Good luck to you in whatever you decide and I hope you get well again soon, D x
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