Ugh!

Hello Vanessa, I feel you but I do not personally know the pain but I hear your frustration loud and clear. My 16 yr old daughter has the disease and without health insurance for you I know that it a huge problem. I don't know what I can say to make u feel better about the situation. There are other non approved creams that u can find on the internet but again they are temporary reliefs. Anything I find helpful I will.post as well. My prayers are with you as well.

I feel your pain Vanessa, I was diagnosed with HS last year but it started in 2013. I have just come out of hospital after having surgery and have woken up this morning to another abscess 😩

It's so hard to adapt to the change of life when your used to doing things. I'm young and have always been active and enjoying life but since 2013 I have had nothing but surgeries, I have to take so much time of work, can't go out, can't go on holiday it's a nightmare , I totally understand where your coming from and yes we need a cure ASAP 🙏 I hope things get better for you and keep talking about how you feel, it will help. Stress just makes it worse.

All the best x

Don't get discouraged or give up! People are finding that HS is caused by food sensitivities. I had it for 10 years and had tried EVERYTHING. Spent lots of money. One day I had my worst inflammation ever - 5 huge cysts that had tunneled deeply together. I cried myself to sleep that night. I woke up the next morning and Googled "does food cause hidradenitis suppurative" because I thought about how I had cooked several different recipes that same weekend. I found a lady talking about nightshade vegetables, HS and autoimmune conditions. HS is an autoimmune condition. She cut out nightshades and went into remission with her HS! I started cutting them out that day and my cysts were going down by that night! Do an elimination diet and add foods in one type at a time until you get inflammation. When you get a cyst, you'll know what food you're sensitive to. Peanuts also give me cysts but I've known I couldn't eat those since before I had HS because they give me mouth ulcers too. Google "nightshades and autoimmune" and read about it. Nightshades are in LOTS of foods and condiments. Nightshade vegetables are tomatoes, potatoes, peppers, spices made from peppers (paprika is in so much stuff), eggplant and tobacco is also a nightshade. Even shredded cheese is coated in potato starch! Good luck! Hopefully you can cure it with diet and not have to pay a doctor!

I forgot to say that I have been in remission since last summer! I am very strict with my diet not to eat nightshades but unfortunately I have not lost any weight! Boo!