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I have been suffering with inflammatory arthritis for almost 3 years with no luck in gaining any meds to control / reduce symptoms ! Every time I have an appointment with Rheumatologist (RT) they do bloods etc. even an MRI but it is then months before a follow up appointment therefore things have changed again. Tomorrow (Nov 22nd) I finally get to see my Rheumatologist since she did the MRI back in June I haven’t seen her since June 5th (5 months).
I am at the end of my tether the swelling pain & limited movement has now moved into my wrists and hands. I wake every night from 4am in agony too much pain to move the duvet (hands) pains in my knees & constant swelling, pain in my back & hips I often struggle to get out of bed to sit down to go for a pee to open a bottle to pour a drink of water or pop my painkillers from the packet. I can't hold a pen to write even a list until early afternoon when the pain lessons slightly. I am so limited by the pain. I am just 40 I am unable to work my husband said just yesterday my hands look like an old ladies. He said the rate my symptoms have developed imagine how they could be in another 3 years.
Previously I have reacted badly to sulfasalazine, methotrexate & prednisone & now exist on diclofenac & codeine painkillers. I seem to flare 5 days out of 7 but always at random so unpredictable.
It is so depressing & I am hoping that now this has moved into my hands my RT may qualify me for something stronger and I am hoping for a biological from my research possibly Enbrel. Can anyone advice on Enbrel side effects, results etc. & also how to get the RT to take this seriously. I feel there is a cost factor and that his may vary in different areas/regions of the country. I can’t work out how some people get offered biologics & others just Methotrexate etc.
Any advice / thoughts much appreciated
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