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Im 23 years old and was diagnosed with proctitis in Sept 06. I visited my GP when I was 17 and explained about my symptoms but was told it was IBS. Gradually things got worse and in 2005 I was eventually referred for a colonoscopy where I was diagnosed with Proctitis. My GP was rubbish and prescribed me Asacol and I kept on visiting him insisting that I was not getting better and the bleeding and toilet urgency was getting worse but he did nothing. In June 07 I paid nearly £2000 to BUPA for private investigations as I was angry with not getting better. Days after my private investigations I became terribly ill and was hospitalised for 5 weeks and underwent more investigations in which I was then told it had spread and I now had UC. As a result I was off work for 3 months and was on steroids, suppositories, aziathroprine, basalazide and iron tablets. The bleeding and toilet urgency stopped and I felt like I was getting better. Then in Nov the bleeding started again. I visited my consultant who arranged for an emergency sigmoidoscopy and as a result of the investigations I was admitted to hospital for 4 days. I was discharged on steroids and the above medicines and over christmas the bleeding stopped. However it started again in the new year and I have just recently been told that I have to be hospitalised again but I have to wait for a bed to become available.
I feel so down and dont have a clue what to do, I have a mortgage and a career and feel like Im going to lose it all. I find myself bursting into tears at the thought of having this illness forever. I have recently started going for acupuncture as I am willing to try anything to get my liFe back. I feel myself asking all medical professionals is there anything I can do and they just say try not too let it get you down. Does anyone know if it is directly linked to diet? or does anyone do or know of anything that helps?
I feel so stupid writing moaning when there are probably so many other people worse off than me but I just dont feel like anyone really understands.
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