ulcerative colitis pls help
Posted , 9 users are following.
I was diagnosed with ulcerative colitis yesterday. I tried looking online for help and advice and one thing that came up was about foods to avoid. Most things on the list were saying avoid due to getting diarrhoea I don't get diarrhoea. I was told I was in full flare up during the colonoscopy but I didn't feel my symptoms were as bad as they have been in passed. I thought I might of been in remission 🙈
My stools have changed and are much looser now but that's cos I am on tablets for IBS and they are the only thing that makes me poop. I stopped taking them yesterday and low and behold I haven't pooped today. I just don't know wot to do. I want to help myself and avoid wot could make my UC worse but the foods to avoid don't get me diarrhoea. Any help or advice would be appropriated.
1 like, 22 replies
KevB5 Emagine
Posted
I've battled UC for a few years and for me staying on lialda/asocol has worked well. I was taking a small dose, 1.2 mg down to every other day and tried going off. Not long before I flared up. Back on the lialda and now OK. I'll stay with it as it hasn't given me any side effects.
tony33900 Emagine
Posted
Grains
Sugar
Dairy
Alcohol
This seems to help me out quite a bit.
ele68135 Emagine
Posted
Hi,
I can only tell you my experience and i hope it helps
I have been diagnosed 3 years ago and was prescribed asacol.
I had blood mucus and dirrhea +severe acne.
I started making smooties-banana strawberry carrot spinach ginger smooties and stopped all dairy products!
Currently im meds free for 1.5 years ( but i would take meds if i would get a flare) and juicing 0.5-1 kg ecological carrots +cabbage+ginger root+tumeric every day
There has been scientific studies about cabbage healing all ulcers in belly in just a couple of days! GOOGLE IT
+CARROTS ARE AMAZING!
But its a trial and error process as everybody react differently. I also try to eat non-inflammatory diet(gluten free, no rice, no pasta no bread no milk products and barely no animal products, No sugar.) Veggies, beans, chicken sometimes etc. I made this change in my life due to severe acne + colitis but of course sometimes i cheat( like once a week or month, but only a little)
Hope it helps
Let me know if you have any questions
Ele
michelle34409 Emagine
Posted
Hi all I know it's been a few months since anyone was active but I'm hoping some one may still get notifications. I was on another forum but some of the people on there were so patronizing .
Any way I could really do with some advice . After suffering with just blood and mucus since last July I was told in April I hadn't got proctitis due to normal biopsies so was taken off the asacol suppositories . I saw a colorectal specialist in august this year who arranged another sigmoidoscopy which showed I had got just 1cm of Inflammation was and was put on pentasa enemas. After using 2 it was like a miracle. No blood no mucus . Life was finally great then 4 weeks ago I started getting a pain which felt like period pains and thought it was maybe wind . This started on the Saturday by the Tuesday I had diahrreah and awful crampd so thought it may be a bug but rang the ibd helpline for advice. I was told it could be am intolerance to the enema so told to stop using them . I stopped but still had the diahrreah and cramps so the nurse ordered a stool sample to rule out infection and c diff which came back clear .
After 2 weeks of suffering I saw my gp and was prescribed pred foam enemas . I still had diahrreah daily but not so many and the cramps were easing . The blood had stopped until Friday night I was woke in the night and had diahrreah all night with horrendous cramps and bleeding again . This eased off yesterday and isn't as bad again today .
My question is can it really get that bad so suddenly ? Even without meds I never had a lot of these symptoms so it's all new to me . My scope was literally 4 weeks before.
JonWHut michelle34409
Posted
Hi Michelle,
Chin up, but it sounds like you are going through a tough time!
It was proctitis which forced me to go for a permanent stoma. Its not easy, but I found proctitis much more painful and problem causing than my initial colitis. Mine did come on a little more slowly than it sounds like yours is, but once it was there very little had much affect. I was on high levels of prednisolone which helped manage the symptoms, but never really cleared them. I couldn't use the enemas also as it was simply to painful down there to even think about sticking anything in!
I had the odd good day, but most were bad.
I'd get yourself straight to the GP or specialist and look to get something to try and get on top of it before it gets any worse.
michelle34409 JonWHut
Posted
Thank you for your reply . I've been in contact with the ibd nurse again today who said my symptoms sound very much like an infection or parasite so has ordered more stool samples . She also wants to check my calprotectin levels. She has said though that if the samples come back clear and my calprotectin levels are high I will need to go on oral steroids which I really don't like the idea of . I've read so many bad things .