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I suffer with Thyroid Eye Disease (TED). I had an orbital decompression carried out on my left eye 9 days ago. Since the morning after the operation I have been unable to see.
I have had an MRI & a CT scan which both came back saying my optical nerve was healthy & there's no sign of a hematoma which would cause oxygen loss meaning loss of vision.
The doctors suspected I may have had an eye stroke as this was the last thing to rule out. They arranged for me to have Fluorescein Angiogram carried out yesterday to look at my vessels to try & diagnose if I had indeed suffered an eye stroke. The test came back that my eye was clear of any problems. I was told if the photos taken from the back of my eye were shown to a specialist who didn't know my case he would say my eye is perfectly healthy - yet I'm still unable to see anything out of my eye.
The doctors are completely baffled by my situation, they have never seen anything like it before & my file is being sent to the mentor of my surgeon who is based at Morefields is London. I have no timescale as to when I will get a reply & I'm obviously worried that I won't see out of my eye again.
Has anyone come across anything like this before?
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