Unable to walk , or hold onto things

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Numb tingly hands, cant walk, full body numbness, tight around waist

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11 Replies

  • Posted

    Winter befofe last i started having nnumb and tingly hands,

    Off and on icy firery feeling. It lasted bout a year. Nothing last

    Winter. But now its horribly bad. Hands numb and tingly, cant

    Feel anything i touch,cant even hold a cup cus it falls from my

    Hands..my legs extremly week ,i cant walk without help orr i fall

    . if im standing for awhile ,witbout warning my legs give out a d i drop.

    No balance, cant take shower or use rest room without help. My 16 year old is try

    Ing to do all the things around hohse i hsed to do. Thank u sweetheart..ur apreciated.

    My husband is working and runni g back n forth all day checking on me.. I feel like such a burden...its depressing

    My husband is the greatest husband in the world. I am waiting for mri test....its so frustrating not knowing

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    • Posted

      My son's got Reynauld's disease and it sounds similar. He was usuing a rotivator in my garden and he had to wear his motorbike gloves because it was hurting his hands, and he said they were getting really cold.

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  • Posted

    Morning Mrskyle;  I am wondering "have you actually been given a diagnosis of Fibro, after having EVERYRTHING else ruled out"?....have you had a Lumbar Puncture, and as you say, you are still waiting on your MRI?    I feel that you DO need to make sure that this is the correct diagnosis.

    ?It may well be that you do have Fibro;  however,  your symptoms are certainly very severe and sound  a lot worse than others, and to have ALL at the one time.

    ?What specialists have you seen?   and what treatments have you trialled?

    ?Would like it if you could give us some more answers to the above, as you do sound in need of some-one to talk to as well as more help.             I will be waiting to hear back, and hopefully can help you in some direction/s ??                Bron

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    • Posted

      Yes i was diagnosed with fibro many yearz ago.

      But this seems to be something new.

      Before my walking ability came about i was

      Getting random shocks thru oht my body, like tazor

      Sort of. It wou!d stop me in my traks.

      also at timez it feels like im wearing a corsette that is pulled

      Too tight around my waist and it becomes hard to breath. I can4 pick @nything

      Up with my fi gers.

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  • Posted

    Hi Mrskyle.

    could you give us some more  background health information?  your symptoms could fit anything from Low B12, to ME/CFS and a host of other conditions.

    C

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  • Posted

    This can certainly be me/CFs. I have similar symptoms as you--tingling, weAkness and heaviness in legs. Burning and numbness. These symptoms started three years ago when I had relapse of my me/CFs. You should make sure nothing else is going on. But if not, it could def be this lousy illness.
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  • Posted

    I really feel bad for you Mrskyle, it is so hard to not be able to do for yourself. I must agree with previous posts, please share more information about your symptoms.

    Years ago during a Me/Cfs relapse, I was diagnosed with carpel tunnel (sp?), it felt like my hands were being attacked with a staple gun, electric shocks constantly. I had surgery on my right hand, not surprised when it didn't work. Figured it was some new surprise from CFS.. I had it in both hands, even mentioned having my hand removed, (the Dr. calmly explained the procedure for amputation.) I was shocked, shouldn't he have suggested other options? Thank God, my family Dr. when I saw him in tears, (I had been in constant pain for months, couldn't hardly eat or sleep) prescribed Lyrica, I swear I slept for 3 days straight. Anyway, I suspect there was some trigger to cause this relapse...probably stress. I don't know enough about your issues, but Lyrica my help depending.

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    • Posted

      That's chilling about the Dr explaining amputation! I would've been terrified. So glad it didn't happen.

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    • Posted

      Me too, I still can't believe a specialist didn't try medicine before surgery. The pain was awful, pain meds didn't help, nothing helped until I took Lyrica. It was a Godsend for me, I still take it as needed. It knocks the pain down immediately, I usually only take one dose. But now I know better than waiting, I take it asap. (The only drawback is it can make you feel goofy, until you get use to it)

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    • Posted

      That's great that you found something that helps. If he was any good he wouldn't thought of it first; you're right, to jump straight into thinking about amputation and shocking you's just terrible! eek

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