Unacceptable side effects of Levothyroxine

What is leaky gut.

Leaky gut is when your gut is very dammaged and crud leaks from it inot your paritineum, causing arthritis and other autoimmune conditions. Very dangerous and damaging. Results in bacteria getting in places it shouldn't.

Peggy,

Here is a stray thought that passed through my head which I read the other day and made me think. It said that your gut (and stomach and esophagus) are "not really inside your body", they are outer surfaces which join up with our true outer skin at our mouth and anus. 

I know that doesn't answer your question but that is quite a concept isn't it?

Nothing on the surface of our skin, our obvious outer surface is supposed to enter our bodies (although bacteria does sometimes through cuts and scrapes). And so a leaky gut is a surface which is supposed to be sealed from our "insides" but occasionally has minor breaches and lets waste material into our true "inside" - where it should not be, and causes chaos.

Yes I have been treated with Omepazole for "Reflux" I think it comes under the umberella of "Leaky Gut?" doesn't it ? I've been hypo and taking Levothyroxine for approx 14 years, the reflux and severe heartburn began 9 months ago. The specialist informed me he had been on the medication Omepazole for six years and seemed to think this statement would help me accept that I too would be? I'm pleased to say since loosing a little weight and cutting sugar out of my eating plan entirely, I no longer suffer with reflux or heartburn. 

Hi Pauline, interesting. I was on the same stuff for all the stomach pain. I went off it when I went off gluten, as in the end it was the gluten that was causing all the pain, and I had somehow developed an extreme sensitivity. Read up on the gluten/thyroid connection, its pretty huge!

Did you mran to write T3 twice? And what's T#?

When my TSH was suppressed (<0.01) and my t4 & t3 were at the top of the range i seemed very reactive autoimmune wise, reacting to lots of foods (getting eczema, itching and slightly swollen fingers - which seemed to water retention as it wad better in the morning). now my results wre in range it's all calming down. eczema almost gone, though still on the restricted diet. i plan to stay on the diet for 6 months more - then hopefully my immune system will 'forget' all the foods were a problem. and="" my="" t4="" &="" t3="" were="" at="" the="" top="" of="" the="" range="" i="" seemed="" very="" reactive="" autoimmune="" wise,="" reacting="" to="" lots="" of="" foods="" (getting="" eczema,="" itching="" and="" slightly="" swollen="" fingers="" -="" which="" seemed="" to="" water="" retention="" as="" it="" wad="" better="" in="" the="" morning).="" now="" my="" results="" wre="" in="" range="" it's="" all="" calming="" down.="" eczema="" almost="" gone,="" though="" still="" on="" the="" restricted="" diet.="" i="" plan="" to="" stay="" on="" the="" diet="" for="" 6="" months="" more="" -="" then="" hopefully="" my="" immune="" system="" will="" 'forget'="" all="" the="" foods="" were="" a="">

Hi Barbara, thanks for your reply. The T# was meant to be T3... THis was the T3 total, so I'm still waiting for the Free T3, because I know that I've had high ReverseT in the past.

From what you said, the symptoms could be due to high values. Except my system has been aggitated for so long, its hard to tell what's what.

Hi MVC, Thank you for the clarification. I'm still confused though. When you say "have T3 in the middle of the range and T3 way high" presumably you meant to write one of the T3s as T4?? I would guess at the former (I.e. the middle of the range one). So the question is 'what can cause middle of range T4 and high T3'? I'm no doctor, but based on pure logic and thinking of the process: step 1 is producung TSH, step 2 is producing T4 in response, step 3 is converting T4 to T3, step 4 is T3 being received by thyroid receptor cells...the only way I can see that can cause 'T3 to be high campared to T4' is if step 4 isn't working properly. The thing that I know of that messes up step 4 is 'reverse T3 blocking the receptor cells', so that the T3 stays in your bloodstream causing high blood test readings but not alleviating your symptoms. What do you think to this analysis? The doctor who created ThyroGold has written a book - I've not yet read it, but intend to - he has a free link on his website to the chapter on reverse T3. I'll PM you the website and link.

super please say if you are in uk--have you been able to get t3 here--was it an endo or gp please --my new gp says impossible to get t3 in uk and has put me on levo to try--but i really don't want to take after all i have read?? thanks for any info you could supply---sky

Hi sky 1

I am In the UK. I would change your GP he is wrong T3 also known as Cytomel is prescribed by my Consultant due to severe reaction to levothyroxine. I am currently waiting to see a Endocrinologist for more advice. Ask to see a consultant as I have had my thyroid removed and your condition may not be the same.

Hi Supersound

How did you manage to get prescribed T3?  I also have had my thyroid removed and am having lots of problems with Levothyroxin and my GP will not consider T3.

 

Your consultant has to tell your GP to change your medication. Most GPs are ignorant about thyroid cancer and only deal with under or overactive thyroid conditions. Either try another GP or ask for a consultant referral.

THANK YOU SUPERSOUND

Hi Christine, I've recently been prescribed T3, having struggled on Levothyroxine for 4 years.I have hypopituitarism as well as hypothyroidism,and was referred to an endocrinologist outside the area, after getting nowhere with my previous Endo. The new Endo is happy for me to try T3 only at the moment, so building up my dose gradually.I told him how much I hated Levo, and how I felt so much worse on it, than even on nothing at all, though I know I need thyroid medication.Gill

hello was endo in uk? as i am still trying to get t3 have asked gp and now new gp and 2 diff endo's all say no no no... would like some amunition to be able to say hey someone in... has a trial of t3 thanks

Christine, in 2004, prior to the CCG changes in 2012, I was prescribed T3 on the instructions of a consultant. My GP is no longer allowed to prescribe it. Ask your GP to be referred to an endocrinologist. If the firstendo won't supply it, go back to your GP and ask to be referred to another, different endo. You need to work out how you can persuade them you need it. Consultants like 'evidence'. There is a good checklist on an NDT site that asks you rate from 1 to 10 where you're at on about 20-30 symptoms. You could start keeping a wekly record.

Sky, levothyroxine may well work for you. It only seems to be a problem for people who don't have a working thyroid. Bear in mind this site is dominated by people who are searching for answers because they are not feeling well on what they have been prescribed. The vast majority of people who are prescribed levothyroxine are perfectly well and are getting on with their lives, not visiting discussion forums searching for answers.

 well said

no thanks for the SPAM in your private message to me... what the ??? Thyro-Gold... 

It was the checklist for overstimulation I sent.

Hello Sky, sorry for delay in replying.Yes, I am with a specialist centre in Oxford at the Churchill Hospital. I was previously with an Endo in Wiltshire.Hope that helps. Gill