Unacceptable side effects of Levothyroxine

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I was described Levothryoxine 2 years ago and my GP has increased it until I am now taking 125mcg.I have never had so many various symptoms in my life - severe weight gain including puffy face and eyes, very itchy dry skin, brittle nails, thinning hair but the major items are the pains in my joints and muscles - especially in my knees and my hands. The doctor said I have carpal tunnel syndrome and also now have high cholesterol,,,,,,, When reading other peoples' experiences it would appear that many people have all of these symptoms so why is it that GP's do not take this illness more seriously. I recently asked if I could have a full blood showing all readings and also if I could be prescribed Armour and was told no. It also scared me to find that several pharmacists in major chemists haad never even heard of Armour. Has anyone felt like they have had enough and just stopped taking Levothyroxine and what was the result?

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  • Posted

    Has anyone ever had a side effect of light headedness or dizziness with the levothyroxine? I take a low dose of 50 mcg. Seems like every time I take it here lately I feel that way. Plus have heart palpitations. I have been taking it for three years and only had the symptoms ever so often. But here lately it's been constant. Not sure it's the levothyroxine or something else.

    • Posted

      I had migraines so severe that I woukd not have noticed being lightheaded. I'm pretty sure I was dizzy,mi couldn't even walk.

      heart palpitations can be caused by low thyroid as well as by the meds. But, when the meds were too low, they caused heart palpitations worse that without meds. 

      Basically, many of the side effects of the levothyroxin are similar to hypothyroid symptoms, so it's often difficult to discern. 

       

    • Posted

      You should have your cortisol level checked. I had been experiencing extreme lethargy and frequent dizziness before being diagnosed with hypopituitarism (low cortisol can cause dizziness, lightheadedness and fatigue). After about eight months, I experienced very mild arrhythmia -for about a month- until I stopped drinking coffee. I was drinking too much coffee then, and it has taken almost a year for my magnesium level to drop a bit. (It has been the highest number in the "normal range" for many months, and that is concerning because I don't consume multivitamins, magnesium supplements, coffee, or cacao now.)

    • Posted

      Yes I got that a lot, ligth headed and dizzy.   Didn't have palpatations though, but we are all different and get affected in different ways.   

       

    • Posted

      I had this happen. It tur s out my iron was low . I have Rigoberto it checked every now and than. I'm surprised that I havnt read any comments to this.

    • Posted

      Missed typed that. Have your iron tested. I had this problem also and that was it I have to check it sometimes it gets too low.
  • Posted

    I Have stopped taking it from Tuesday this week and have been off it for 3 days now.  All the aches and pains in my joints have subsided and the bloating and a general feeling of getting myself back agaain and feeling more positive.  I saw my GP today who is aware of this and advised I may get the tiredness back again but said to see how I go and if it does slip then he will refer me to a specialist through my works private medical care.  Other than that I have to go back for a further blood test in two months time.  I have only been taking Leveothyroxine sinc emid June this year starting on 25 mg and then onto 50 mg for the last 3 weeks - for me it was awlful could not cope with the weight issues, cloating and joint pain whcih I have not experienced before.  My quality of life was suffering so it was not a decision I took lightly. I would not advise it but to make sure you research this as much as possible as I am now taking well woman menopause to help B12 and fatigue and also going to start taking kelp tablets which are known to be good for an underactive thyroid.  I'm saying this will go away and I amy still get the massive fatigue only time will tell and changing diet to see what is good for thyroid ie dates and figs I have heard are good.

    • Posted

      This is my understanding of what is going on. Iodine supplememts only help the small proportion of hypothyroidism that is caused by low iodine intake. Be aware that too much iodine is toxic to the thyroid so one needs to be very careful if using iodine supplements. Some areas of the world have low iodine levels in the soil and therefore in the foods that are grown and eaten, and there is a higher chance of having non-Hashimotos hypothyroidism. The majority of hypothyroidism is Hashimotos, where the immune system attacks the thyroid. Many people consider there is a link between eating gluten and Hashimotos, though I can't remember the details. Going gluten free is said to help, as is eating a diet low in processed foods/ready meals. This very time consuming to implement - I have to do it due to being allergic/intolerant to many foods and additives.

    • Posted

      wow!!  Please keep us updated on this...and I swear I read the opposite regarding kelp...so confusing..just shows how it seems noone really knows what all these things mean but I have an inclination to trust my own body...seems weird that so many problems now days and who knows how many are caused by meds people take ...I may be getting off mine also before too long.  My test next month she wants me to fast to see what my cholestoral really is...but like I said before it went sky high after I started taking this levo
    • Posted

      I definately feel worse in AM when I eat and drink certain things..last night I had a wheat quesadilla and some alcohol..sure enough this AM I am stiffer than mornings when I've been a good girl and just had an apple for snack and a cup of peppermint tea.  Also when I have salty snacks I wake up in stiff pain...but...having said all that..I wasn't having these problems before I started the levo a few months ago now.  I literally had NO symptoms of anything when she put me on this stuff..I only took the pills cuz my numbers were so off she told me I really needed to...

    • Posted

      Yes, supplements don't work fr Hadhimotos. Except, once the autoimmune disease is in full swing, your body attacks not just your own cells, but the thyroxin as well. The levo seems to accelerate the autoimmune disease, and your body eventually even reacts to iodine, which is why iodine is often NOT recommended for Hashimotos. Iodine can trigger a huge immune response. However, my experience. Was that if I slowly added iodine supplements, eventually the immune response sopped, and I was able to get the iodine into my system. The point being, that with Hashimoto's (probably Graves as well), you wind up with iodine deficiency due to autoimmune disease.

    • Posted

      The other thing to consider, is that exposure to radioactive iodine will also result in the immune system attacking iodine.  It doesn't take much, so the recent meltdowns at nuclear power plants will trigger trigger and even cause autoimmune disease. There's really nonwayvaround this.

    • Posted

      Hi lamrosey2, the gluten reaction takes about 6 hours for me. If I have something for dinner at 6, I usually wake up around midnight with horrible abdominal pain

      Iodized salt seems to trigger the immune system. Very bad idea. I use only natural sea salt or Himalayan salt. 

    • Posted

      It's better for your body to drink alcohol at any time of day other than late at night or before you typically get some sleep. I only experienced stiffness before when I had taken a bit too much vitamin D... I am still technically deficient so I only take it when I begin to experience a little joint pain or discomfort. You cannot have high cholesterol if you consume a plant-based diet. Eggs typically don't cause any significant increase in cholesterol. 

    • Posted

      If if your perscribed dose is too high, you may be able to go for one to three months without needing to take levothyroxine. In my experience, I have found that levothyroxine helps to regulate body temperature and does not alter my energy significantly. I would not suggest consuming vitamin supplements or any tablets aside from vitamin D (and possibly vitamin B12 or other B vitamins if you do not consume any processed foods that have added vitamins and avoid fortified wheat products) because they may contain extra ingredients and most of the manufactured vitamins are not useful for the body. There are many different types of seaweed that can be purchased frozen or dried from just about anywhere. Nori, which is not exactly a seaweed, contains the least amount of nutrients. As for any other seaweed, a little goes a long way!
    • Posted

      Having any alcohol gives me joint pain. As does sugar - sugar makes me swell up as well.

      Did you know that in UK a lot of the bread contains soy? They also add extra gluten to the bread to make it fluffy. Modern flour contains more gluten than it did in the past. Spelt flour has the least gluten and is the flour that they used in mediaeval times. It can still be bought in UK supermarkets.

    • Posted

      I think the alcohol is POISON and givng me my joint pain...I haen't had any for several days and my pain went way down...this coming weekend my oldest daughter is getting married and we are all heading to Palm Springs for two days..as much as I hate the pain I don't think I want to obstain from alcohol for such a gathering...lol...it'll be all in the name of science to experiment smile  My room has a kitchen so I can continue to eat my healthy diet..

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