Unacceptable side effects of Levothyroxine

I'm taking 0.05gm, and my hair still falls out . It's been almost a month already that I'm in my period . I might need a different medication or more gm . I've never had this problem before with my period.

The levo didn't work for me at any dose, and caused a ton of problems. Nearly killed me.

What happend ? Why it didn't work for you ? I went a different doctor I was taking the wrong medication . First the doctor told me I had hypothyroidism and prescribed me levothyroxine I went with a different doctor she did a bunch of lab work she told me I have hyperthyroidism she made me stop using Levo .. Now she's doing more lab work because something is wrong with blood I wonder is that medication had something to do with.

Hi Eve, this medication doesn't work. IFor me it was nothing more than a placebo with side effects that worsened my condition and caused more autoimmune disease, migraines and pituitary dysfunction. I have severe thyroid disease, so doing nothing isn't an option. 

I wrote it's a whole bunch more, but this page crashes.

I dumped all the meds and went to dietary changes, supplements and cleansing. Feeling much better now, but still trying to recover from the damaging effects of these meds.

Eve, swings between hypo and hyper can happen when first getting hashimoto's. Eventually it settles down to be hypo. In the meantime see if you can cut out gluten, it might help.

Hi Catherine Same thing for me doctor told me something about that autoimmune disease show in my blood . she ordered more lab work and I'm so worried right now because I don't know what's the next step. Are you currently taking any medicine for this condition. How did your doctor find out it was this medication Levo ? I'm so sorry for all this questions but I'm so worried that they might find something else .

Hi Eve, don't worry. You'll be fine with a little work. Ok, maybe a lot of work. My doctors diagnosed my thyroid disease based on a large cyst, because by the time I was diagnosed, my TSH was only elevated to around 2. My doctor didn't figure it out. I go to several alternative practitioners and every single one of them noticed I was getting progressively worse on the meds. One was diligent enough to track my dosage changes and health indicators over several years and then reviewed everything for me.

Its really difficult to do it yourself when you've got all the brainfog going, ya know. Then I started realizing that maybe the thyroid meds are the wrong point in the feedback loop to try to fix the problem. So I thought, well, if it isn't thyroxin, and it isn't iodine, what's before that? Tyrosine. Tyrosine plus iodine makes thyroxin. But tyrosine is made from phenylalanine. The body can't make phenylalanine, but it can make tyrosine. From a biochemical perspective this is so simple, I figured it had to work. I dumped the meds, added essential amino acid supplements plus extra phenylalanine, and viola!  Much better!

Hi Barbara, I've been caring for my mom and haven't had time to go back to the doc. Remember, my bloodwork numbers were never very far out anyway and my thyroid disease, though serious was diagnosed by the cyst and high rT3. My TSH was 2.5 when I was unable to move. So I guess the testing might show something, but really, as long as I'm improving, I feel pretty good about how I'm doing. I did heavy amino acid therapy for 2 months then tapered back. Now I take an amino acid when I remember, or when I remember bc I'm feeling a little low. I gained/bloated a bit initially, but that seems to be improving. I tried dieting and my body still wasn't responding a few months back. So I need to get my exercise going.

Really, I've been so sick for so long, that I need to focus on slowly strengthening. Plus I've got the foot issue... So while I feel like I want to do more exercise, it's slow going so that I avoid reinjury. I'm able to walk for an hour now at a time. I still get winded easily. I'm trying not to worry about heart problems, as I know that both untreated hypothyroid can result in heart problems, but the meds can cause heart problems faster than the disease. For me to get any results from the meds, my bloodwork had to be in the high end of normal, so that isn't good either because you could argue that this was over medicating, though this is necessary for a lot of thyroid patients.

The massive belly and other bloat that started and continued with the levo is very stubborn, and is decreasing slowly, though I suspect when I'm able to exercise more, the circulation will help a lot.

i probably won't go back for testing until I have time for an annual physical, just because, seriously, if I have an extra hour, I'm better off using it for sleep it exercise, or to out out some other fire since I'm so carve hind in my life.

Hi Catherine, sorry to hear you're still not feeling better, though it sounds like the foot is improving. I was diagnosed with vitamin D deficiency last month, have taken high dose supplements and it is now back in range. Yet again I had to buy my own meds off the internet to avoid the fillers they put in that I'm I tolerant to. NHS pharmacist couldn't supply any without glycerol, glycerine etc in, both of which are derived from corn (US name is maize). Thinking of your foot, Vit D deficiency leads to mal absorption of calcium and leads to osteoporosis - but I think you said you'd had your Vit D checked and it was OK.

How's your mum doing on ThyroGold? Still improving?

Are you allergic/intolerant to the fillers? There is a liquid thyroxine you can take. One variety of liquid thyroxine also made me swell up. TEVA was OK. I tried 2 porcine NDTs and they made me swell up too, so now I'm on a bovine NDT called ThyroGold.

Hi barbara im on teva liquid but im still v achey even fingers & toes i would like 2 try ndt but most arnt licenced in the uk & my docter wont give unlicenced meds! Id like 2 try armour but how do i go about getting it r u in england! Im in the northwest

Sounds like you're in a similar position to me. I'm in UK too. I'll pm you how to find a private endocrinologist to prescribe NDT, if you're interested. It costs about £200 for first consultation and £90 thereafter. I was prescribed two NDTs, both of whixh made me swell up (NatureThroid and WP Thyroid - both porcine based). So I'm on ThyroGold, a bovine based NDT that is classed as a nutritional supplement and my NHS GP is doing monthly blood tests (TSH, T3 and T4) to monitor it for me.I've been n it since June 2015.

I have to pay for ThyroGold myself as my NHS GP can't prescribe it. It costs about £1 a day.

By the way, worth trying g first (because its free!),.are your joint aches and pains due to food allergies and intolerances? Try cutting out gluten (I don't show up as coeliac in the blood tests, but gluten seems to cause me problems). Also alcohol and fruit cause me joint pains.

Hi barbara will u pm me with the thyro gold £1 adays fab