unbalanced.. chest pain.. brain fog.. chronic headaches.. jelly legs.. of work for 9 weeks now

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Hiya all sorry about the long post.. but I feel I'm going crazy and need to get this out😢

I have been unwell for 2.5years.. all started one day on my lunch break.. started feeling horrible and collapsed and ended in emergency.. Ecg was irregular so doctor's keep me in a did a heart Mri.. ecg.. stress test and echocardiogram.. which basically came back within normal limits.. sent home.. told to see Gp..

So unbalanced.. dizzy.. had 6 migraines in 2 months.. jelly legs..numbness..fatigue.. stuggling to walk.. this was all reslly bad for 8 weeks..

Saw a Neurologist whom did 3 Mri's

Found lessions on my spine T8/9 T6/7

But normal brain.. was told possibly MS..

Continued to function at about 60% for ages.. saw a vertigo specialist.. had a lumbar puncture.. came back normal.. so was told maybe not MS.

Anyway 2.5yrs later 8 weeks ago ended up in emergency 4x in 2 weeks.. have developed anxiety now after not knowing what is happening..

Been off work 9 weeks now.. cant drive.. my symptoms are unbalanced..

Brain fog.. fibromyalgia.. bruxism.. cold feet.. fatigue.. numbness.. trouble swallowing.. jelly legs..nausea.. chronic headaches.. neck pain.. tingling.. migraines.. chest pain.. back pain.. urinary problems.. anxiety..pins and needles etc..

Please can anyone help.. I have little kids and just want my life back

0 likes, 5 replies

5 Replies

  • Posted

    Has your neurologist ruled out a peripheral polyneuropathy (general involvement of nerves in arms and legs)?  Do you know if your reflexes were normal or reduced?

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

  • Posted

    They did nerve conduction studies.. that came back within normal range.. and an EEG.. which made me so dizzy as soon as they turned it on..they could not complete the test.. or I would have vomited..
  • Posted

    I have had thyroid studies done and they found reverse T3.

    I drink at least two litres of water a day.. and make my own food.. no junk food in my house

  • Posted

    Hi it sounds like vestibular migraine or migraine associated vertigo. Its very common but hard to get rid of. You need meds.  You need to see a neuro who specialises.  GPs and ENTs know nothing about this.  Go to facebook website for VESTIBULAR MIGRAINE PROFESSIONAL or MAV SUPPORT. Ive had the same now for 4 years.  I was scared it was MS too but its not.  Its very common.

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