unbearable pain fatigue Getting worse

Thanks, yes and sorry sounds real similar

The looming into I can't do sooooo tiered to even trawl through things

GP / specialists should be directing that

really not me,

but just get the same old face from the over paid

#{{#%^

well you know what I mean it's just 6 years now of ,

" not sure what is happening there" though another MRI scan coming up soon

and its warn me out to complete dispare

no end Of

Sounds awful! Perhaps they're ruling things out before they look at ME etc.

Thanks for replying

Wish it was

some name would help immensely , they said it's not CFS cause I'm ill all of the time (no boom n bust). Confused as they only thing been said in all the years is he has

Severe pain syndrome with a moderate/severe neurological functional disorder

What that then- no help thanks really NHS

Really ruined my life as if they have given the illness a proper title like ME or anything really then it would have assisted in a retirement plan

But no name (great) work say then no chance of a recovery period or now say you cannot receive any assistance 2 yrs on as your illness might not be for life (not medical retirement for you cowboy).

Just sold my car (a Subaru) to survive though, hope all the Dr's are enjoying their big fat sausages & cigars tonight

Sorry to be cynical about ME, as it's really messed me up if that's one of the things what I have

I've had ME for over 10 years and I've been virtually bed ridden for all of that time. I don't really get boom n bust as such, it's more like slightly better days and worse days.

I know you don't feel like being forceful or pushing the Docs because you're feeling terrible and don't have any energy but I think that when you can it would be useful to be referred to an ME specialist as I was.

Specialists or rheumatologists know a lot more about it than doctors an it sounds like your know virtually nothing!

Thanks again for replying

I have been refered now to two neurologists and then a ME specialists they all say it's not ME

I'm waiting for referral to another neurologist but my GP has put me on Gabapentin which isn't working and now has me off cocodomol and as you prober lye know the pain is absolutely horrific night / day, all the time

even laying down doesn't work now just flexing my muscles gives a few minutes of help (then it gets worse). Really can't understand what I can do

I keep saying I need something better or just have to take cocodomols to have a few hrs break

I hoped someone here could say I believe it is ......

Well I see GP soon will try to push the next specialist along

Thanks again for the help u have given, it's really appreciated nite

Have you thought about changing your GP?

So many people have had to change gps several times; I had to so I could find an understanding one who'd at least listen and try anything for me. He's not always allowed to give me the things I ask for and he feels awful about that.

If they've taken you off something that was helping and put you on something that isn't that's very wrong! Sounds like they don't know what they're doing.

On what grounds have they told you it's not ME? And have they ruled out Fibromalgia?

Hi again

They said not CFS/me as there was no boom/bust just ill all the time

Fibro was only mentioned once but never anymore since then.

The psychologists say its deffinently physical but the Dr's say there not sure and once mentioned it could be a somatoform disorder.

I can't understand that as the fasciculations and muscle cramps with lumpy strands of muscles that are real hard should be enough to show them it's physical pain

Thanks for replying

Speak later

Thanks

It's an option but also he's taking advice from specialists and then the specialists are changing regular

I'm very confused with it all, and when exhausted and excruciating pain then it really drains you more

Thanks for replying

Thanks for the input, I'm with A GP tomorrow, will discuss it ASAP

??