Unclear Diagnosis

Hi Toby , appreciate the reply , where are you based ? I’m in UK , and not heard of these meds but I can ask . It was also mentioned about a drug called Azathioprine , but , apparently it paralyses your immune system & can make you prone to various cancers , this drug , I obviously do not want to risk ! 

So looks like Haemmerhoidectomy , here I come ( , I use suppositories regularly for the hem issue !

Appreciate your reply !

I just use Scheriproct suppositories for piles , not been told about any others for this ? I’ll try anything ( within reason ! ) 

Like you , not keen on oral tablets , and one has been mentioned that paralyses your immune system but also makes u prone to various cancers , so I’d not want that one at all !

Thanks for reply !

I have bleeding piles too but only been prescribed Pentasa for my Proctitis and it has reduced bleeding from them to frequently nil..ask your doc for suppositories as they do have them and they certainly work for me!..cheers and good luck ☺

Many thanks for all the info ? Where do you get the mesalamine enemas from ? Is it your doctor ?  

Hi bricklayer,

sorry about the typos last reply was from cell phone

pour coconut water from fridge over ice for sweeter tasting, it may take some getting used too but once you do, it will taste fine

I want to stress I did all the meds out there, even enemas, but it was a cortisteroid enema not the mesalamine

the enemas took out like all my symptoms almost right away once you are able to keep it in overnight, then I ate some red meat, and bam instantly red blood, I still didn't get the message, did some more enemas, all better, than happened to eat some red meat, and bam red blood, so for me I figured out what was keeping the UC active...coincidentally I was eating a lot of rib eyes when my proctitis and hemis progressed to UC, I also had a lot of unmanaged stress, and strained A LOT on the toilet....SID ENOTE, GET YOURSELF SOME FLUSHABLE WIPES, YOU WILL NEVER GO BACK TO TP TP IS FOR CAVEMEN

sure I tried all the natural capsule probiotics and diets etc, non pasteurized milk from the farm.. but until you find something that takes away the symptoms then all the rest is moot

once I figure that out, I just happened to think about the scene in cast away when tom hanks says all the coconut water was a laxative well don't worry about that, you are drinking it for the inflammatory properties, and hit it hard, your intestines are traumatized and wounded, and just think about it, what if you had a scab that got rubbed off every day, do you think it would heal? doubtful...and you use your intestines daily...so back off all the whole grains etc.. hydrate, hydrate, hydrate

i know I am all over the place but I am just typing as it comes to my mind to hopefully help you

get the enemas from your Gastrentologist, I used perrigo (generic from israel)...some folks say there is about 6% chance of being allergic to mesalamine, so google the symptoms of allergic, and then maybe just push a little into you 1st to see if any of the allergic symptoms arise...if not, then push forward....if the dr says no he wants to try something else, don't let them push you around, you say no I want to try the mesalamine enemas

my symptoms literally went away maybe after one or 2 nights of keeping it in, I was blown away red blood gone, mucous, gone, trips to bathroom gone..I had tried cortisteroid enemas, no luck, I found out the mesalamine enema one night when I happened to search left sided UC....I may have even tried mesalamine suppositories, I do not know, but it probably just was healing the anus, when I already had UC

I had UC for year or 2, who knows, when you are miserable you lose all track of time...my mother had it, and had colon removed  once I figured out it was the red meat that was the main culprit, and then I happened to try the coconut water, then I went coconut crazy and got the coconut milk yogurt, and then I don't even know how I came across the inner-eco live probiotics in coconut water

I then just went hog wild and removed all the usual culprits that I had already tried before my symptoms has lessened before i had found the enemas, I was so happy, it wasn't very hard to remove all the other things....so yeah I maybe has some shredded cheese every once in a while on a chicken taco....they do make coconut milk ice cream, we use almond milk...1st year I stayed away from other hard meats like, pork steak/chop, etc.. I ate a lot of ground turkey thigh, better than the white ground turkey most grocers sell....you can get the ground turkey thigh at the place jeff bezos bought out  maybe 6$lb...its just me, wife, and daughter, so I would have them make me maybe eight 1/2lb packages and freeze then and pull them out for dinners....I did find out maybe in my 2nd year of remission that ground lamb was fine for me...yipee

we do make most things from scratch, not many boxes in our pantry...just kinda think outside of the box...citrus i doubt is good...berries, berries, berries..avacados great

back to the enemas, I would even step my feet up the wall after administering, like a child sometimes does when playing in their bed an bedtime, let the gravity pull that stuff in...if you just have proctitis then maybe you don't have to do that...the enemas should come in like 4 boxes of 7, something like that, so you will have plenty, so why not use them....if the symptoms go away, you will be tempted to say to yourself, I'm ok, and go on your merry way....I did not do that....UC is like a the monster in a scary movie, it always gets back up off the ground....I probably saw symptoms gone in about 3 enemas with a couple of those maybe not staying inside in the beginning....depending on how bad off you are will decide how many times it takes to finally keep it in

I can tell you I still used about 23, just to make sure UC got the 10 count knockout  sure enemas aren't fun, but neither is UC....I went to costa rica during full UC, brought a rubber water bag with enema attachment to give myself warm enemas, and I was even staying in primitive home in the woods, don't ever want to do that again! lol

you will notice I gave a lot of details in my 1st reply, I believe that is what is lost, most folks really don't drill down enough in the details

so did I try to remove gluten for a while?, after symptoms gone from enemas,yeah, but not that long, maybe a a few months....but that doesn't mean it isn't your main culprit, start with removing red meats and the other easy things and then just kinda watch to see if anything irritates you...I know its hard because who keeps track of what you eat...I just lucked out figuring out the red meat, but even for me it took 2 times getting hit on the head with an anvil to figure it out

I can tell you I only started posting on these sites in the last month because I only had my experience, but couple months ago, a FB friend mentioned her problems, and she & I were real friends from when we were younger

she did what I told her and found out red meat was a bad boy for her as well, the enemas were gonna be like $400 bucks due to her poor insurance, but we found a way around that they worked immediately for her and like 3 weeks into my treament she went off her lialda....I DID NOT TELL HER TO DO THAT! But I was blown away that she took that chance.

She is not following my stuff to the letter, but she is doing ok so far, I drop msg's to her to try and keep her disciplined...she did the enamas and poff she was way better, she also definitely removed the red meat....she does have the inner-eco bottle and she is eating the coconut yogurts, I doubt she is drinking cocnut water much, she said she don't like the flavor....they do make flavored coconut water, just make sure it is natural and not artificial with refined sugar etc....anything else I really don't know about what else she has removed form diet

I'll tell you I thought i was 5 years into remission till couple months ago I had a memory of something that jogged my timelines back and I realized I was only in my 3rd year....well that actually reinvigorated me, and I stopped eating ground grass fed red meat which I started to eat in my 3rd year of remission, and started back to getting the ground turkey thigh, I also use ground pork....I just want to never again go back...most folks say it will always rear its head, but I prefer to think no, it comes back because folks get lax on what worked

the coconut water hydration and inner-eco, and yogurt, should alleviate any straining you have

good luck, sorry for the long reply